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ASD. Help needed

4 replies

Carlax93 · 21/07/2018 15:47

My 4 year old son has recently been diagnosed with asd. He's non verbal and uses picture exchange cards to help him communicate his basic needs such has hungry,thirsty,tired etc, he also has a lot of sensory issues which means he's still in nappy's due to putting pants on him causing distress, and him holding his wee in (he would hit himself to stop the wee from coming out) he also puts EVERYTHING in his mouth from play doh,sand,paper,crayons you name it it goes straight in his mouth, he's due to start full time school in September & I'm absolutely terrified! He's been getting 1 to 1 in preschool which has seen him make a massive improvement. he still won't let another child near him he will run away & go sit on his own, he doesn't interact with adults either, he's very much on his own. I don't know how he's going to cope at school. He won't be getting a 1 to 1 but they've sent me a timetable and he'll only be doing 1 hour a day for 1st week back and then staying for his dinner the 2nd week so they're trying to make his transition from pre school to his new school has easy has possible for him, I'm so scared for him :( it breaks my heart that he's always alone. He's such a loving child towards me and his dad & we wouldn't change him for the world, I just can't shake this feeling he's going to come crashing down :( he doesn't do change of routine well at all ,& I feel like so many things are about to change for him, what can I do to support him? It's so hard that he can't communicate with me or tell me how he's feeling. (Sorry for the long post)

OP posts:
noblegiraffe · 21/07/2018 16:08

What have the school said? Why hasn’t he got a 1-1? What support will he be getting in class? Did they mention anything about applying for an EHCP?

I’m not a primary teacher, could you ask for this to be moved to the primary section where primary teachers might be able to give you advice/reassurance, or at least what sort of things you might expect.
I have to say the timetable sounds a bit optimistic and you might find it changes.

Minisoksmakehardwork · 31/07/2018 07:27

I'd get this moved to th special needs section. You will find parents with a wealth of experience there.

Minisoksmakehardwork · 31/07/2018 07:27

@Carlax93, just in case you don't come back to this!

Jimpix · 31/07/2018 21:40

I don’t be know which area you’re in but I wonder if they do anything similar to Derbyshire?

Enhanced Temporary Additional Early Years support localoffer.derbyshire.gov.uk/getting_support/etaeys/default.asp can be accessed in Reception and then school can apply for Graduated Response for Individual Pupil localoffer.derbyshire.gov.uk/getting_support/grip/default.asp

It is temporary support but can be long term or until you apply for an EHCP (if needed). I’m surprised his pre school and school haven’t put support in place for him for September.

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