Devleopment delay help - High Calcium??

[nickjchelm]

Hello all

First time poster here and I feel like a trespasser as I am a Dad on Mumsnet!!

I am worried about my our little girl and I am wondering if there is anyone out there who has been in a similar situation...

Our daughter turned 2 last month and she has ALWAYS been behind her milestones.

She didn't roll over until 1
Didn't crawl until 15 months
Only started walking with a tonne of help by 18 months

She was small at birth and has remained small since (5th percentile head size, 10th percentile height).

Her language skills are the fresh worry in that she does not say a word, not one (at 25 months). She doesn't seem to recognise or react to any words either, for example if I ask her to point at a Dog in a book she has no idea what I am saying.

No luck with any commands either, if I say 'pass me the ball' she has no idea what that means.

Its so worrying watching her around other kids who are practically juggling and playing the violin by comparison (those parents do not know how lucky they are).

She was assessed at 19 months and was on the verge of global development delay but not quite. I think if she was assessed today she would be as she has hardly progressed since.

One thing she has got is a high level of calcium in her blood, further tests have been sent off but I was wondering if anyone had experience of this. Did it cause development delay for you? Did it improve?

I thought high calcium was good but have since learnt it is not.

Thanks in advance

Have you seen an ent doctor to check for hearing loss or glue ear?

Are you in the UK and she under the paediatricians?

Sound like there is a lot going on for her and that must be a worry. Was she prem?

Thanks for your replies, nothing wrong with her hearing, that has been tested.

She was premature but only by 10 days. My wife had a difficult pregnancy with hypertension and preeclampsia.

We have seen an endocrinologist for the calcium as they thought thayay be hormonal and a paediatrician for her development.

We have speech therapy this week but can't imagine what they are going to be able to do.

We're both worried about autism and such disorders as williams syndrome (she has none of the facial features however).

Everything is so slow with the NHS though.

Was hoping someone had a similar situation with the excessive Calcium and could shed some light.

Sorry I can't answer the question about calcium...but my nephew (who I care for, attended every appointment ever, seen every day of his life) has GDD and it sounds like him from what you've described. Can you not get another assessment for GDD?

He also had speech therapy which actually really helped! He has since been diagnosed with autism too. But to be honest it's only since he turned 3 that he has come on leaps and bounds! He's now 6 and although he's still behind some kids his age, he is doing better than we ever thought possible...so please try not to worry too much

Ask to see metabolic doctors. If for example there is something causing high calcium it may be treatable. Get referral and assessments and plug into speech therapy and under fives groups for kids with delays.