My dd is nearly 13 and has had problems with her ears since birth, resulting in various surgeries including several sets of grommets, long term drainage tubes, a cholestaetoma removal, tympanoplasty etc
She started with an ear infection in August that was severe- bleeding from the ear, foul smelling discharge, significant hearing loss. Due to admin errors at the hospital, she couldn’t see a consultant until November (in the meantime, she had several courses of antibiotics from GP that did nothing at all. She was referred to A&E by GP who couldn’t treat her). At the appointment in November she was referred to surgery, and until the surgery date, she had to go to hospital every two weeks to have her ear drained.
Didn’t hear anything about an op date, then it was her next consultant appointment in April when consultant said she needed a more ‘serious’ operation. Since then, she’s had 2 operation dates that have both been cancelled.
She was due in tomorrow morning, I received a call at 5pm to say it’s cancelled. The surgeon has left the country and no one else can do the surgery. She just has to wait.
Told dd who was devastated, understandably. She’s in pain frequently and her hearing is reduced.
I’ve demanded she be seen by children’s audiology while we wait (they wouldn’t see her until after her surgery), and I asked for better pain relief, but the on call ENT consultant refused as he’s never met my dd.
It’s been 7 months since she was put on the waiting list for surgery. What can I do now?