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Children's health

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Children with CCAM (Congenital Cystic Adenomatoid Malformation)

1 reply

C0urtneyJayne · 10/05/2018 10:39

Hi, my daughter is 10 and a half months old and was diagnosed with CCAM when I was 20 weeks pregnant with her. We were transfered to specialists in Manchester and spoke to a few consultants and surgeons who explained her condition to us. She's due to have surgery to remove the cyst from her lung anytime soon but I was just wondering if there is anyone who has been through this before or anyone who knows anything about what will happen in the surgery because our consultant hasn't managed to speak to me properly in months so I'm kind of in the dark with everything and I'm worrying myself sick with the thought of my little petite baby having such huge surgery!

OP posts:
strawberrypenguin · 10/05/2018 11:01

I don't know anything about the condition I'm afraid. But my DS1 has serval large surgeries as under 1 so I understand your worry. It's hard handing them over but it helped me to remember that although it was all new to me the consultants had seen lots of children needing similar surgeries and were experienced at what they do.

Have you searched for a Facebook support group? There often is one.

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