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Labial fusion

7 replies

Bambamber · 15/04/2018 20:03

My 12 month old DD has been diagnosed with labial fusion by a paedeatrician. We know the likely cause, and she has no complications so she said there's no reason for concern until puberty is likely to start

But she has prescribed oestrogen cream (estriol) to see if that helps. But I've just been reading the leaflet that comes with it and the possible side effects have me feeling very uncomfortable. There seems to be an increased risk of certain types of cancer or blood clots (amongst others). But it says this cream is part of HRT so don't know if the possible side effects are more for when having full HRT?

Does anyone have experience with this please? I'm hesitant to use something like this, especially when the diagnosis only becomes a problem in years to come and may resolve itself before then anyway. But on the other hand the paedeatrician must have weighed up the pros and cons before prescribing it anyway?

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Madmarchpear · 15/04/2018 20:12

My dd has one too. She is 3. I haven't even taken her to the docs because I thought the NHS website seemed to suggest treatment wasn't necessary. I've heard the creams can temporarily thin the skin but can re-fuse after the treatment has stopped.
After much online research I read some pretty dodgy side effects of the oestrogen such as breast tissue developing! I just don't think synthetic oestrogen so young can be good when 99% of cases will be cured when puberty kicks in.

TickledOnion · 15/04/2018 20:17

My DD has this. I went to the gp who advised to just wait and see. It just resolved itself by about age 4 without the need for any cream.

minipie · 15/04/2018 20:28

DD had this and I saw a specialist, who said it was very common and usually resolved itself. He said we could use oestrogen cream if we really wanted but it might just close up again when we stopped. We did nothing and DD's opened by itself a month or two before she turned 3.

Bambamber · 15/04/2018 20:42

Yeah the Dr mentioned even if this cream worked it could close over again, especially as she believes this could be because of eczema. So she said if the cream worked they would then prescribe an ointment with minimal ingredients in to apply to try prevent it happening again. All seems a bit much for something that will most likely resolve itself

I think I may give the cream a miss then and see if there's and improvement in a few years time. Thank-you!

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minipie · 15/04/2018 20:45

A side benefit is that when DD did a poonami I knew the poo couldn't go up into her bits!

FluffyFerrets · 15/04/2018 21:19

I actually had this when I was small. I had an op at 10 yrs old to separate it but this was only due to the fact I was suffering constant repeat UTI's because of it.
They don't know whether it would have eventually unfused (is that even an actual word?) itself or not. Apparently this was the worst case scenario and they don't normally operate.
I remember being in hospital but nothing more really, it didn't fuse again and has since been normal. (I'm almost 40 now)

Bambamber · 15/04/2018 21:58

@minipie that did make me chuckle, poonamis have a lot to answer for, but were actually what led to the discovery in the first place

@FluffyFerrets thankyou for sharing your experience. The Dr did mention surgery as a last resort, but as with you, only if there was complications and would only really be considered around the age of puberty

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