Duanes syndrome

[Peach2018]

Hi, my daughter is 2 and a half, about 6 months ago she was diagnosed with duanes syndrome. I have been taking her to the doctors about her eyes since she was born as I felt as though something wasn't right, they continuously told me she would grow out of it until she saw the specialist who confirmed that would not be the case. My husband and I have recently started to notice her duanes a lot more, I wondered if anyone else has a child or knows of a child who also has duanes and if they noticed it got worst as they got older. Our daughter isn't scheduled for another specialist appointment for a few months so if anyone on here has any insight on the condition I would really appreciate it!
Thanks x

I worked with a child who had it. She learnt very quickly to compensate for it and last time I saw her was managing very well. She just automatically moves her whole head to see certain things rather than her eyes.

I have duanes type 2. It has remained the same throughout my life, or possibly improved a bit since babyhood (babies eyes do tend to wander around a lot).

Thinking about it I probably have learnt to compensate for it but don't really think about it. Only time I notice it is when reversing the car when I have to turn right round in my seat.

DS has it. I noticed it more when he was smaller. Now he turns his head to compensate so looks less obvious. I can tell when he is tired or rundown because I start noticing it again. Apart from this, his vision is excellent and he doesn’t need glasses or anything. In a new situation (eg new classroom/teacher) he seems to avoid eye contact - I think this is because of lower peripheral vision, he needs to look away more. So in lower years at primary every teacher would start off being concerned about lack of eye contact/asd. But this always disappated by Christmas, and now no one mentions it at all.

So to answer your question, I don’t think it gets better or worse, just that people get better at compensating for it.