Experience of Hypermobility causing incontinence?

[Chocolateporridge]

My dd is 7 and has had problems with daytime wetting and night time incontinence since she started nursery. It's a long story, I've posted about it before, but basically she's mostly dry in the daytime now but incredibly wet at night. She's also on a daily laxative for slow bowels and we see the continence nurse every few months for a bladder scan etc.

I recently came across some information about Hypermobility which says that one of the symptoms can be incontinence, lack of bladder control and constipation. A couple of years ago my daughter was examined by a paediatric physio who said that she was very flexible and "at the top end of normal" although not hypermobile. Over the past year she's been complaining of aching legs too so I'm wondering if it could all be linked.

If anyone has any experience of this do you think it's worth me taking her to the GP to have her checked again?

Bump?

My son is hyper mobile and will probably be diagnosed with Ehlers Danloss syndrome when he is older - he is also autistic but this is not connected (they think).

He is not nappy trained and they have suggested stress incontinence but it's hard to tell if the lack of potty training is a developmental issue, a physical issue or both (we think it's both)

Thank you @bobbybobbins, I can understand the confusion, our dd was assessed for autism a couple of years back and at the time we thought the incontinence might be linked to that, but it turns out she's not autistic.

My son has hypermobility (though not JHS or EDS) and when I read about incontinence - his toilet training made sense. He had learnt how to use the toilet, and could tell when he needed to go but also had sporadic bouts of wetting his trousers every now and then. It resolved itself by age 4. It could be a core muscle strength problem, a paediatric physio, who diagnosed his hypermobility advised us on

"Loosely knit collagen fibres can mean that the pelvic floor is far less able to adequately support the internal organs and this lack of strength may play a role in incontinence. Stretchy collagen in the bladder-wall can also allow the bladder to stretch far more than that of a non-hypermobile person, meaning a patient often ‘holds on’ far longer than they should before urinating, causing urination problems, infection, or leaking. One of the main causes of stress incontinence is urethral hypermobility."

www.edhs.info/test

Watching with interest. My DD (also 7) has some bladder continence problems and I think possibly dyspraxia. However, there is hypermobilty in my family.

I'm going to take her to the docs for other reasons anyway so I'll ask when I'm there, will post if I find out anything useful @bananamanfan

Thanks @chocolateporridge. Good luck with the gp.