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Has anyone (or their DC) been referred to a neurologist about migraines?

6 replies

iwouldgoouttonight · 08/01/2018 20:11

DS (11) has had a few bad migraines over the last couple of months, really painful headache with aura, one side of his body going numb/tingly, weird vision, vomiting, the lot.

The doctor has given him some tablets to take when he feels a migraine coming on, and this seems to work, the pain and weird vision subsides after about an hour. And he's referred him to a neurologist. Does anyone know what they'll do? The doctor said they'll do blood tests but was a bit vague about anything else.

OP posts:
Jassmells · 08/01/2018 22:05

I did when I was little. Had an MRI that showed some unusual
But not dangerous fluid they thought was the cause. Once they found that not a lot happened. I still get them 25 years later.

iwouldgoouttonight · 08/01/2018 22:11

Thanks. I used to get bad migraines too although I was never referred to a neurologist, but weirdly I've not had one since I gave birth to DS. It's good that I knew the symptoms though otherwise I think we'd have been rushing him straight to A&E the first time he had one!

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Jassmells · 08/01/2018 22:14

Well at least they've referred that's half the battle - good luck hope he gets some help they are horrible things.

SwiftAnchor · 08/01/2018 22:23

Dd had really bad migraines and she was referred to a neurologist. After the initial appointment they had some concerns about some of her symptoms and got her an urgent mri but from the results decided it was 'just' severe migraines.

She was put on beta blockers - propranolol for a year to break the cycle and it really did help. She went from really terrible migraines- visual disturbance, vomiting, numbness, unable to talk etc every 3 weeks to now only very occasionally.

The consultant said in young teens sometimes just breaking the cycle can be enough.

She also now takes magnesium and coenzyme q10 tablets as recommended by the migraine association.

When she has an attack she takes anti sickness tablet and a sumatriptan nasal spray and she can usually sleep it off. But I don't know if it's the supplements or whatever but now at 17 she doesn't get them as severe as she did in early teens.

I hope your dc manages to get them under control, such a horrible thing.

iwouldgoouttonight · 08/01/2018 22:39

They are horrible aren't they, glad your DD has them more under control. We were trying to find links between when he's had then to see if there might be something that causes them but there doesn't seem anything obvious. Mine used to seem to be triggered by stress/tiredness and bright strip lights that they have in some shops. I thought DS's might be anxiety related as he was worried about school, but then he had two over Christmas when he was much more relaxed so I don't know.

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SwiftAnchor · 08/01/2018 22:51

I could never find a trigger for Dd either for a while she used to get them near the end of a school day and I thought maybe not drinking enough or the classroom lighting but then like your DS she had some over school holidays so never really found a trigger.

From what I have read (mainly through support type groups on Facebook etc when dd was at her worst) the combination of magnesium, q10 and vitamin D works well.

Dd takes these daily and has really had a big improvement - although whether down to this or other factors I'm not sure but she is reluctant to stop in case they get bad again.

Might be worth a try?

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