DD is 7 and has had pain in her legs and feet since she was a baby, started with spasming and screaming periods in the night as a baby every few months then progressed to painful legs and more specifically feet which click and grind when they hurt which is on average 2/3 nights a week, always worse after activity.
As a baby she was referred to Orthapaedics who said she was fine and was just nice and bendy, referred to Paeds at 2 who ran bloods which were all fine but said she was hypermobile and the pain was growing pains. When she started school things became worse, possibly because of increased activity, pain also in wrists but still predominantly in feet and legs and screaming in night with ankles clicking and grinding but not doing this when not hurting. Was referred to Rheumatology ( at a bigger hospital than the original one) who did x rays of legs, hands & feet, ran bloods and said everything was OK, she's slightly hypermobile and that as she grew older would probably get less bendy and diagnosed growing pains.
Things haven't got any better but am at a loss of what to do really. We were referred by the GP to Physio last year after dd hurt her leg by overstretching it doing something really simple, the GP thought she perhaps needed exercises to strengthen muscles to help things. Saw the Physio who said she would class dd as hypermobile any more apart from one wrist and elbow, no need for exercises and advised to be as active as possible. She is reasonably active but any running for a long time, jumping, skipping etc will result in her screaming in agony that night or sometimes an hour or two later. We avoid trampolines & bouncy castles as they always cause lots of pain.
This school year I've noticed that every night after PE dd has a bad night with some degree of foot or/and leg pain, we manage it with warm baths with magnesium salts in, ibruprofen etc but it doesn't seem right that she's having to put up with so much pain. I'm sure I'm going to be labelled a neurotic mother at this rate with repeated GP visits about the clicky ankle joints that are only clicky in the night when they are hurting and there's no one else there to witness.