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Original poster

Apparent NAI ... osteogenesis imperfecta ?????

89 replies

Kaylax88 · 26/12/2017 14:55

Hi please help me and my childs father are currently being accused of child abuse. There's no way I'd ever hurt my children. I think my daughter has osteogenesis imperfecta. Does anyones child have this ?? How can i get tested for it to see if me and her dad are carriers ? I'm losing my mind both my children are in foster care due to this

OP posts:
eatsleavesmostly · 26/12/2017 22:18

If you have a seed of doubt that it is your partner than split up ASAP and inform all agencies you have split up and that you had no idea that any harm occurred and do think it could be a medical condition...but that you have a small piece of doubt that on occasion you had felt your partner was tougher than needed.

Be honest and do this for your children.

Then push solicitor for more contact - as just you.

GetOutOfMYGarden · 26/12/2017 22:20

How long has your DD been in hospital with your contact being completely supervised OP?

Back to your original question, it's your DD that needs testing for OI if it's felt to be warranted. 25% of cases are spontaneous and that means you and your partner wouldn't carry it.

Original poster
Kaylax88 · 26/12/2017 22:20

I think we will split. As if nothing comes back to be medically wrong it'll have to be him and I think I'd kill him. I would have to move out the area and just let him have supervised contact with our son. I wouldn't let him near our daughter again.. does that make me a bad mum? Or should he be allowed supervised contact with her

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Original poster
Kaylax88 · 26/12/2017 22:22

She's discharged from hospital now and is in foster care. We see her and our son 4 times a week for 1.5 hours. I want her tested for it but nobody seems to listen I think I'll have to go through solicitor once she's back in jan.

OP posts:
imnotalpharius · 26/12/2017 22:22

Sorry DXA is the bone density scan which can be part of the diagnosing process for OI.

clairethewitch70 · 26/12/2017 22:23

DH, DBIL and DN have OI. When DBIL and DH had multiple fractures as a child, abuse was suspected, but an astute dr spotted the blue sclera in the eyes. It is very clear in the eyes.

Original poster
Kaylax88 · 26/12/2017 22:23

Oh right. They looked at her x ray and said that bone density is within normal limits but obviously a dxa is more in depth. I wonder why it can't be performed on a baby. Surely they can't say bone density is normal from looking at an x ray then

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Original poster
Kaylax88 · 26/12/2017 22:24

She does have a blue tinge but it's not proper blue it's a very faint blue. I don't know anyone with oi so I can't compare but you can see in photos the slight tinge. Can anyone see it in this photo or is it my head playing tricks ?

Apparent NAI ... osteogenesis imperfecta ?????
OP posts:
furryelephant · 26/12/2017 22:29

Yes, I can also see it! As far as I know if your partner ends up accused of inflicting the injuries I would very much doubt he’d be allowed unsupervised access to either of your DC, and rightly so. I’d also probably kill him first anyway

Original poster
Kaylax88 · 26/12/2017 22:30

Thank God somebody else can see it. I didn't know if it was my mind playing tricks.

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Original poster
Kaylax88 · 26/12/2017 22:32

Ss have referred me to counselling as obviously being accused of this is making me very emotional. Do you think if I took the offer up they'd use it against me and say I'm mentally unstable ? I'm not mental in the slightest but obviously being accused of hurting your baby when you haven't is very destroying

OP posts:
GetOutOfMYGarden · 26/12/2017 22:34

Ask for the test once your solicitor is in again.

How long has it been since she's been out of your care? With OI fractures would keep developing through normal handling in foster care.

The picture attached shows the type of blue sclera in OI.

Apparent NAI ... osteogenesis imperfecta ?????
Original poster
Kaylax88 · 26/12/2017 22:35

Since 28th november. I do think they should do further scans to ensure there's no further Injuries as she showed no signs with the ones she has. & oh her eyes aren't like that

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fairgame84 · 26/12/2017 22:38

There have been a few cases where inexperienced doctors have accused parents of nai when there has been a medical cause. I really hope that you can get her tested and find out the truth either way.
Keep on OP Flowers

Original poster
Kaylax88 · 26/12/2017 22:39

Thank you I will find the truth in the end. Ever since he diagnosed her with shaken baby then got proven wrong I've had no hope in him

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furryelephant · 26/12/2017 22:42

I think you should definitely take up the counselling, it would be more concerning if you weren’t in pieces about having your children away from you! It would hopefully help you too, there must be so many thoughts going through your head that talking it through with someone qualified might be able to help a little Flowers

Original poster
Kaylax88 · 26/12/2017 22:43

Thanks I'm just worries about them using it against me in the future

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furryelephant · 26/12/2017 22:55

I think and would hope that it would be seen as positive and that you’re taking on board what they suggest Smilehaving children removed from their parents is the last thing anyone wants to happen, yes mistakes can be made but hopefully you’ll get answers soon and your babies can come home xx

rosy71 · 27/12/2017 00:03

Ds2 has been diagnosed with probable osteogenesis imperfecta. He was diagnosed after several fractures and a dexa scan. He didn't have his first fracture until he was 3 though. To properly diagnose, you need genetic tests which can't be done everywhere. You and dp also need to be tested to see whether you're carriers .

notapizzaeater · 27/12/2017 00:27

Can you start being tested as parents to see if you carry the disease ? Might start the ball rolling ?

Original poster
Kaylax88 · 27/12/2017 00:29

I'm trying to push for the testing but apparently it costs a lot on the nhs so they're reluctant to do the tests but it's needed

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Original poster
Kaylax88 · 27/12/2017 00:31

I read somewhere on the internet that it could be due to when she was in the womb. When she was inside me she didn't ever move I used to have to jiggle my belly to get a kick to know she was alive. When they're inside if they don't move much it can cause bones to fracture easily from normal handling but I can't find it now

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Rainbowsandflowers78 · 27/12/2017 10:22

I’m really sorry but if you are even doubting your partner than that is by far the most likely explanation - and that’s what the drs are going with too

I would split and then surely you’ll get more chance of getting the kids back?

If he has harmed them then 100% he should be allowed no contact at all with either of them

Original poster
Kaylax88 · 27/12/2017 10:43

It's not really doubt it's more of a situation where if nothing medical comes back then he would be the only 1 with the opportunity

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Gizmo2206 · 27/12/2017 10:53

Hi my little girl has a rare limb condition and had a fracture at 8 weeks old. It was the most horrendous experience of our lives. The specialist in her condition said it was unrelated and we had to make contact with other parents with kids with the same condition to fight the accusations. We were told we would be arrested and questioned and were only allowed to stay with our baby under supervision. We did absolutely everything social services asked and engaged fully as we 100% knew we had done nothing wrong. Other children with the same limb condition have suffered fractures as babies so we knew it was related but obviously we had to fight against a specialist doctor. It was hideous and went to a conference where all involved agreed our daughter was at no risk from us and and we took her home and literally never heard from social services again. Unbelievable. My advice would be day you remain open minded about the injuries but know you did not cause them (if that is true) If you close ranks and say your partner would never do that they will find it impossible to work with you.