Slap some sense into me and tell me it's going to be ok

[Notanotherpawpatrol]

My dd3 is 7 months old. For the past 8 weeks she's been having seizures, so far it's been atypical and absence ones. We had her 2nd hospital admission this week and she's been given an urgent referral to paediatric neurology. They've used the word epilepsy a few times and I'll be honest, I'm terrified. I don't really know ow anything about epilepsy, but I do know now is not the time to turn to Dr Google.

Here's the reason I need some sense slapped into me. For my 30th birthday we were meant to be going to Disneyland, but due to some passport issues, that's been postponed to January. My 3 other children are so excited, as am I (big kid )... I want to cancel the whole thing. What if she has a big seizure while we are there, I'll have to deal with hospitals and insurance etc. I'm scared and worried and I want to stay safe and not leave the country ever.
Rationally I know I'm being ridiculous, my dh also speaks fluent French so it's not like he couldn't communicate, I'm just going through the what ifs, which include flying my baby back in a coffin ( anxiety at its best here)
Please reassure me it will be OK? 🙈

I think your best bet is to talk to the peadiatrians or your GP but as long as your insurance is aware and all is covered then I am sure all will be fine.

That said if your not going to be able to enjoy it for worry then postpone again for a few months if you can

There's a guide here:

www.nhs.uk/NHSEngland/Healthcareabroad/countryguide/Pages/healthcareinFrance.aspx

DH is French and the French healthcare is much better than here so I'ld have no worries about that and you can reclaim most of the money if its state.

You have a while between now and your trip, a lot can happen. IF it is epilepsy, there are some fantastic medications that can control the seizures well. My ds is 12 now and was diagnosed at 14months. He is well controlled and we hav travelled the world, I took him to Australia last year just us, and it was fine, just check the health care for where you’re going and get insurance. It can be very scary but you’re in the right place. If you want to talk to anyone who has been down that road please pm me

Our son has tuberous sclerosis and has had seizures since he was born. We travelled abroad when he was 12 months old and bought special travel insurance (ask epilepsy action for advice). The danger really depends on whether the seizures are controlled or not. The main risk is a long seizure but you would go straight to a and e for that anyway. As long as you are prepared to go to a and e if needed and have checked with neurology then I would go.

Actually in your circumstances I would post pone again - I wouldn’t go whilst you don’t know what’s happening to her. What if she had a fit whilst travelling? The stress or travelling or different locations may make it worse for her (lack of sleep etc). IMO it’s just not worth the risk. Trust your gut and wait until she’s had the all clear or a firm diagnosis.

I would also check with the doctor what they advise.

Other thing is if its Disneyland Paris it's likely to be very cold and quite possibly wet in January though upside I guess will be shorter queues.