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asthma cough -- any suggestions?

45 replies

theabysswithin · 13/08/2017 23:31

DD who is 6 has asthma -- its reasonably well controlled most of the time with the brown ICS inhaler and salbutamol if needed, but she tends to have two or three bad spells a year, almost always triggered by a viral infection (not all viral infections trigger but when they do it can take two weeks or so for her to fully recover).

She doesn't tend to wheeze or get breathless unless things are really bad and generally at that point she's on her way to the GP/A&E. The problem is the chronic cough which can literally be constant - every 10 or so seconds almost around the clock -- for anything from a week up to two weeks after a bad attack. Cystic fibrosis and other potentially scarier things have been ruled out.

Sometimes salbutamol works for the cough, sometimes it doesn't. I have tried literally every other conceivable suggestion in the book: steam, Vicks, raised pillows at night, warm water to sip, cough medicine, honey, you name it. There is nothing that makes any impact on the cough. Its horrific, mainly for DD, for obvious reasons, but also for me because it means I get horrendous levels of sleep deprivation and get to the point where its hard to function at work etc. Apart from this I also worry about the impact on her lungs and respiratory system of the spells of constant coughing. Doctors are monitoring the asthma and its a fairly rare occurrence but when it happens its just appalling.

Does anyone know of anything which can be administered in an acute situation which will deal with the cough? I am not talking about a general day to day cough but the kind of constant asthma-related cough which goes on for weeks? Is there anything - and I'm talking pharmaceuticals here, as natural remedies etc don't touch the sides - other than oral steroids and nebulisers, which can be given to alleviate this?

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DameDiazepamTheDramaQueen · 13/08/2017 23:34

When ds had that his meds were doubled over night and I got a stern talking to about uncontrolled asthma. Ds doesn't get wheezy just that awful cough you describe. Are you giving anti histamine too? Personally I'd be willing at the GP first thing to check if inhalers could be increased.

ScarletForYa · 13/08/2017 23:46

I know this cough. Half an hour in the shower works for my dd as well as ear plugs for me (while I sleep beside her to keep an eye and administer reliever)

Obviously different things work for everyone, but that calms the spasm for us.

Also, anti histamine, but you are probably doing that already. Brew

ScarletForYa · 13/08/2017 23:48

Also, just re-reading over your post, is he on a preventer ?

theabysswithin · 14/08/2017 20:21

Hi everyone, sorry for the delay -- yes she's on a preventer. I haven't actually tried antihistamine, strangely. Might give that a go.

I do increase the salbutamol when its needed but I can't help thinking that if its having to be given in such high doses it can't really be working that well?

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Sirzy · 14/08/2017 20:23

I would talk to your doctor about increasing the preventer dose if it's not working as it is.

Or look at something like motelukast alongside it? Or antihistamine as has been suggested

Sittinginthesun · 14/08/2017 20:26

I'd be back at the GP.

DS2 gets this cough, maybe once or twice a year.

Antihistamines seem to help (it took me years to work out that the swimming pool was a trigger, but antihistamines seem to have controlled that).

Last autumn, he got a cold, and ended up on oral steroids. Very scary week.

theabysswithin · 14/08/2017 20:29

I am going to go back to the GP in the morning. I'm at the limits of my ability to cope with it now.

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drspouse · 14/08/2017 20:32

Steroid tablets or the green inhaler (can't remember the name)?

IwillrunIwillfly · 14/08/2017 20:34

There are other preventers than the brown one, so it may be she needs a differerent one, another added in or the dose increased. Def speak to the gp. In the mean time def worth trying a daily anyihistamine for at least a few days and see if it helps. When you say you give the salbutamol, how many puffs? If its really bad try going up to 10 puffs through a spacer and see if that helps if youre not already.

Sirzy · 14/08/2017 20:35

Green inhaler is atrovent

theabysswithin · 14/08/2017 20:45

She is on the brown inhaler (beclamethasone), two puffs in the morning, two at night.

I only give her salbutamol for acute periods, not at all normally she's asymptomatic for long periods of time basically only has symptoms at the tail end of a really bad cold, never gets it related to exercise/allergens or anything -- at the moment I'm giving her six every four hours and if she's coughing really badly I'll give her extra puffs up to 10 to top up. No wheeze at the moment, just this terrible cough which seems to go on for ever.

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Sittinginthesun · 14/08/2017 20:45

Green inhaler is bloody magic! Personally, I have been able to breath for the first time in years.

helpme85 · 14/08/2017 20:53

Hi my DD is almost 6 not formally diagnosed as asthmatic.

Through a long story I managed to get seen by a paediatric respiratory consultant. Do you see a doctor - a specialist?

They say she has exacerbations from a viral wheeze but when she is on her preventor she is fine. They take her off the preventor over the summer. We'll start her again in Sept. we use the orange inhaler - this was prescribed by the consultant when from 18-24 months of age she had 4 serious exacerbations - steroids / nebs and hospital. She's been on and off the preventor ever since - they need to take her off to test if she's truly asthmatic or if it's just a cold.

Anyway - they said if she has exacerbations whilst on the preventor then they've written to our GP to prescribe montelukast at the beginning of a cold. Not sure how this would work as it's only later in the cold she would get an exacerbation.

Maybe the preventor needs increasing or worth trying montelukast

helpme85 · 14/08/2017 20:54

He orange inhaler is flixotide

Sirzy · 14/08/2017 20:57

Yes atrovent has been a godsend for DS too, we use it preventatively (alongside a lot of other drugs!) but it has really reduced the amount of ventolin we need to use.

drspouse · 14/08/2017 21:02

I have a similar viral cough and the green preventer has been great.
My neighbour had a cough that lasted about an hour without stopping and she landed up in hospital.

OpposableThumbs2 · 14/08/2017 22:25

My 6 year old DD is currently trying montelukast. No idea if it's working yet as she hasn't has a cold which is usually the pre-curser to her getting a horrendous asthmatic cough.

DameDiazepamTheDramaQueen · 15/08/2017 00:01

If you're giving her the blue inhaler that much you need to get it under control- that's what the asthma nurse told me.

handmademitlove · 15/08/2017 08:04

Ask about montelukast. My ds and I both have it for night time asthma related coughs.

theabysswithin · 15/08/2017 09:00

Thanks all this is really interesting. helpme your DD's symptoms sound almost identical to mine.

We did have another brush with A&E last night and we have been prescribed more steroids which I am quite concerned about, plus some antibiotics. I am praying that this latest batch of treatments h as some impact as I'm at my wits' end and I haven't had a decent night's sleep for nearly two weeks.

I spoke to the A&E doctor about atrovent -- she said it might be worth a go but because my DD's asthma doesn't usually manifest as wheeze she was doubtful if will work. Also interested in Montelukast.

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Middleoftheroad · 15/08/2017 09:08

Sorry about your recent brush with A&E - hope DD is ok?

We have always used steroids Predisonole - they work but give DS horrific nosebleeds.

Sirzy · 15/08/2017 09:11

Ds doesn't wheeze but atrovent helped him a lot!

Nightmanagerfan · 15/08/2017 09:16

Sending Flowers for you. A coughing child is stressful. I am asthmatic (cough-variant asthma) and was very bad with it as a child. Hope you get on ok with the GP. I'd advise asking for a referral as a lot of GPs aren't specialists in asthma and won't know much. My current GP didn't really even understand the inhalers I am on.

Another suggestion is to call the Asthma UK helpline - staffed by trained asthma nurses. They know the ins and outs of medication and how to deal with symptoms. It does sounds as if your daughter's asthma isn't controlled well at the moment though and you'll need to get her on other medication.

Wishing you all the best today.

coriliavijvaad · 15/08/2017 09:33

Was about to say Montelukast too. Glad to see it's already been said. Also echoing that you mustn't just "live with" symptoms this bad. Keep going back to the doctors until a prescription regime that keeps it under control is found. There may be some trial-and-error as not every patient responds in the same way to each medication - it is an art not a science in some ways.

theabysswithin · 15/08/2017 09:49

Thanks all -- DD is OK in the sense that she's back at home and no respiratory distress etc. Says she feels better and wants to go to her summer club. I just hope the last batch of medication shifts this cough.

nightmanagerfan its true that a lot of doctors seem to know less about this than I do every time I see another doctor I have to run through this long explanation of the fact that wheeze isn't really the issue and its not really about managing this. It's somewhat frustrating and its taken me four years of lobbying and bullying my GP to get to the point where she's being seen by a consultant respiratory specialists as opposed to being fobbed off with more salbutamol by the GP all the time. Considering how common asthma is and the fact it has the potential to be a fatal disease I am surprised how little is known by it among frontline NHS staff I understand they are generalists and busy people but still.

Anyway thanks for all your help and support.

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