It is odd, his gp and the pharmacist are usually great, but I know the asthma nurse wasn't keen on him having Seretide. (despite his paediatrician recommending it) She said he should have Montelukast, which we had tried, but ds would not take (tried hiding it in everything).
It is difficult because ds is 6, lots of autistic traits, largely non verbal, complex health needs and physical difficulties. If you don't know him then prescribing the disc inhaler or montelukast,might seem like a good idea - if you know him you know they won't work!
A&E was a nightmare, 10 on a Saturday night, pissed people everywhere, paediatric a&e was worse than the pissed people. Nurse was brutal with ds, didn't listen to us, then suddenly it was panic stations as we bypassed everyone else and a Dr put a nebuliser mask on ds which made him FREAK OUT. We had our dds with us too and they were hysterical at seeing their brother like this. Then they said there was no bed for him, and we would have to go to another hospital. Eventually we got onto the ward at 3.30am, after 3 traumatic nebulisers' and it was so much better.
I have always had a bag packed (ds has had a couple of hospital dashes - seizure, pneumonia) but think I will have to print up a sheet with information from his paed and write in big letters across the top AUTISTIC (even though he is only being assessed) - do you think this would help? They didn't listen to me at all until we got onto the ward and then the nurse was so lovely.
The rest of the night was nebuliser (no mask this time), alternating with oxygen as his sats were low, and a heart monitor (heart rate of 199!)
Fortunately atrovent, nebulisers and oxygen sorted it, and the consultant (who was someone who has seen ds since he was on SCBU) said we could manage at home with 10 puffs of salbutamol hourly. She has also sent us home with a seretide inhaler to use with a spacer.