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Get It Out! Update

28 replies

littlemaemae · 16/06/2016 18:48

In April, my DD (3) was very poorly with a bowel obstruction, of sorts.
After suffering chronic constipation for most of her life.
with the support of lots of lovely MNers, we managed to finally get her taken seriously and she spent the best part of 2 weeks in hospital getting the blockage cleared.
I would link the threads but I am not sure how to do that!

Anyway, we have been to see the specialist a few times, not much has been done in the way of testing.
We suspect Hursprung's Disease. But the specialist seems to think the condition doesn't exist.
And wants to watch and wait rather than go straight into testing.

She is 3.5 years but is very small. She hasn't grown much at all since her 2nd birthday.
She is the smallest by far at nursery and very sensitive about it, all her clothes are falling off. Nothing fits.
She has been losing weight at each weigh in.
She also has problems walking any great distance and her feet turn in quite noticeably, one foot more than the other. Constantly tripping over.

The specialist feels the weight/ feet are not linked to the bowel problems and is sending her to see a different consultant. Saying it is 'neurological'

I mentioned hypermotility, but it was dismissed.

'Failure to thrive' has been brought up and I am really upset.
We have come home with something new to worry about and no answers.

I am blaming myself as I had anorexia when I was pregnant with her, maybe this has caused her some kind of problem while she was being formed.

It was a severe mental illness, there was nothing I could have done. I keep trying to remind myself. But still feel responsible.

Has anyone had any similar with their DC with the growth?

And does anyone maybe HCPs have any knowledge of weather this could be a result of my illness while pregnant?
She was a healthy new born, good weight, grew and fed well.

OP posts:
Are your children’s vaccines up to date?
giraffesCantReachTheirToes · 02/07/2016 02:38

This is awful. Poor child in pain. If she was like this and you weren't taking her to Drs then it would be abuse/neglect. So how do they get away with ignoring the problem?

It is utterly disgusting.

notyourmummy · 02/08/2016 23:20

How are things now?x

littlemaemae · 03/08/2016 16:45

Hi mummy, thank you for asking.
things are a lot better than they were and a hell of a lot less stressful for us all.
but we are still having problems with the soiling most days, but opposed to every single day it is a big improvement.
She still hasn't been sent for any of he tests promised, so no closer to a diagnosis.
But she has a laxative that works for her and is predictable so we are managing with that in the mean time. But without that she can not have a BM at all, still.
Her legs have been getting worse, and have been to the doctor today and she is being sent for a scan of her hips. And the doctor seemed quite on the ball and hopefully will get it investigated and sorted out for her.

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