maemae my ds is the most inspirational person I've ever known. The accident has bizarrely given him more than it took.
His school friends were utterly shocked, and their parents and the school were beyond awesome.
The efforts they made to wish him well, to come and see him (over an hour away from our home) really touched him.
He also learned how much he had in his tank, how much he could achieve when he used all his strength. Believe it or not, in 2 days due to being bandaged and in bed his legs were bent, he needed physio in hospital was in a wheelchair and had to work ridiculously hard to use crutches and then walk. When he went back to school 2 weeks later, he still limped a bit.
It was a horrific shock to us both, one we won't forget, but his scars are almost gone, just a couple of patches on his legs, it's amazing. At the time it happened I couldn't ever imagine him being the same again. And because I had flicked the kettle that boiled the water that burned him, there was a horrific amount of guilt. I think that's usual with burns. The "what ifs" etc.
As I say, he's more popular now than he was, his profile is higher, he knows he was missed and much loved. That will last a lot longer than a few marks on his skin.
You possibly have a condition or illness to contend with. Ds had continence issues as a younger child too, hence my original interest in your thread and continuing to follow.
I really hope that they get to the bottom of this (no pun intended 
) very soon. If only a diagnosis, it would help inform the right treatment and you'll feel less isolated and exposed, and to watch our little ones in pain and suffering? Nothing, literally nothing worse.
I know how exhausting hospital is, if you can get a respite every so often, even a pop to the cafe for a cuppa, it can help.
Thinking of you. Might not post every day, but I do check up on the thread every day xx