DS has scoliosis diagnosis, he's 16 and has already had extensive surgery and complications for completely different issue so is fed up of spending large amounts of time in hospital.
We have been informed by the consultant that the curve has deteriorated slightly but not massively in the last 12 months and that surgery is the only option to straighten his spine and remove the curvature. Either that or leave it as it is, no other options discussed.
DS is reluctant to have the surgery for all the obvious reasons. He is not in any pain and it does not impact on his life in any way other than he occasionally gets an ache in his left shoulder where his shoulder blade has been pressed out of line by the curve.
Our worry is that having the surgery will actually leave him with long term chronic pain and that he will have reduced movement due to the fusion of the vertebrae and he will be worse off then he currently is.
Has anyone had any experience of this surgery or alternatively has anyone declined the surgery and how are they finding living with this condition into adulthood? Any experiences good or bad would be greatly appreciated.