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Glue ear

10 replies

iwannadancewithsomebody · 07/03/2016 21:34

My 5yo has been diagnosed with Glue ear.

His hearing is quite bad at the moment and it does vary from bad to good days although we do appear to be having a bad few weeks.

The hospital have said that they won't do anything and hopefully he will grow out of it but it is beginning to impact on his life(and mine) where he can't hear and continually turning his head so I speak directly into his ear.

Does anyone have any experience of glue ear or any alternative suggestions?

OP posts:
Are your children’s vaccines up to date?
Sometimesithinkimbonkers · 07/03/2016 21:43

My son had grommets put in any the glue cleared when they did it! ENT surgeon gave me an excited sporners explanation ... There was a---- lot of glue.

almostthirty · 07/03/2016 21:45

If it is impacting on his daily life I think I would go back to the gl and get a referral to ENT as grommets can be fitted.

iwannadancewithsomebody · 08/03/2016 06:41

Sorry, I should have added that he's been under the ENT clinic who have discharged him saying they no longer fit grommets as they can cause complications Confused

Apparently we just have to live with it

OP posts:
dontpokethebear · 08/03/2016 06:45

Must be your local trust? My 3 yr old has just been booked into have grommets.
Is it an option to go private? We considered it as ENT kept putting off fitting grommets, it's not as expensive as I thought it would be.

Witchend · 08/03/2016 13:49

Ds has had 3 sets of grommets. What I do find is that he's generally better over the summer. In fact his hearing is picking up daily now so you may find your ds does similar.

BrieAndChilli · 08/03/2016 15:09

Grommets are not without risk.
DS2 left eardrum was retracted so when he had the grommets there wasn't enough slack after the grommet fell out for the eardrum to repair itself so he has now lost 40% of his eardrum and when he is 12 will need an operation to repair it. He was 4 when the grommets came out so that is a lot of years of no putting head under water AT ALL even with his specially fitted earplug.
The grommets did solve the constant ear infections but have also created another problem

Just thought you should be aware that the risks the ENT consultant is talking about are real (and the same happened to my friends son, he's 12 and has just had the operation to repair the ear drums)

iwannadancewithsomebody · 08/03/2016 20:47

Thanks all, I managed to search the desktop site and have order otrovent and give that a shot.

I was quite surprised at grommets being ruled out immediately.

OP posts:
VocationalGoat · 08/03/2016 20:52

This reply has been deleted

Message withdrawn at poster's request.

asharah · 10/03/2016 10:30

We had these issues from age 3 with DD and now age 7, have taken matters into our own hands. We bought an otovent (less than a tenner) from Amazon, and just a few weeks in, have already seen a huge improvement. Its a little plastic thing, ad pack of special white balloons. They blow the balloon up via their nostrils, one at a time! At first she said it felt weird and struggled to inflate the balloon at all. She also said there was clicking, squeaking and funny tastes in her mouth. Now a single breath does a big ball, and her hearing and balance are noticeably improved. It's on the NICE website, with pretty good reports. I plan to mention it to my GP next time I see her, as I'm really pleased.

asharah · 10/03/2016 11:34

We had these issues from age 3 with DD and now age 7, have taken matters into our own hands. We bought an otovent (less than a tenner) from Amazon, and just a few weeks in, have already seen a huge improvement. Its a little plastic thing, ad pack of special white balloons. They blow the balloon up via their nostrils, one at a time! At first she said it felt weird and struggled to inflate the balloon at all. She also said there was clicking, squeaking and funny tastes in her mouth. Now a single breath does a big ball, and her hearing and balance are noticeably improved. It's on the NICE website, with pretty good reports. I plan to mention it to my GP next time I see her, as I'm really pleased.

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