Floppy larynx

[summerdreams]

Basicley my 15 month old son has had silent reflux and blue episodes when crying since birth. Theres no end in sight and has had weeks in hospital an echo and eeg just to name a few about the blue episodes. Well today at an unrelated appointment with an immunoligist (completely unrelated) the dr said as my son was crying and choking as he examined him "I dont even need to look in his throat but he's got a floppy larynx classic sign" does he do that all the time! Going home and getting on to dr google this seems like it could be the cause of all his reflux, blue episodes, gagging and choking on food, heavy breathing and sounding constantly conjested. Im gonna take him gp and get a refferal to an ent but to anyone who knows about this does this sound right?

laryngomalacia

You will need to have him referred to ENT who will want to have a look with a thin camera. My son had severe Laryngomalacia and reflux, reflux can make the condition worse as it can cause the larynx to swell. Does your son has a noisy stridor? Ours was a severe case and he needed an ayreepiglottoplasty at nine weeks old, he was on high dose Omeprazole for his reflux until he was two. It's rare to need surgery as most cases resolve with no need for treatment as they grow the muscles strengthen. Ds1 is 7 now and you would never know.

The reflux also needs treating ENT should help with that if your GP is unwilling to prescribe anything more than the woefully useless 'infant gaviscon'.

Pretty much sounds like my son How can the 50+ drs we've encountered for all his various problems have never mentioned this and it could even have been caused by the reflux

He's on omeprazole, ranitadene, and gaviscon. Hes dairy free and eats the blandest diet ive ever seen and still we have the same issues its been 15 months of hell. This doctor just threw itnout there like "didnt you know?" He spent a week in the hdu for blue episodes at 4 months old he has tons of drs seeing him all the time and know one noticed!

is he floppy elsewhere too eg delayed in sitting, crawling motor skills?

No he sat at 7 months under 6 months corrected didnt crawl till around 13 momths actual but now is cruising taking steps and coming along nicely. I had his development assesed by a neonatal consultant as the health visitor said he was delayed but they signed him off as fine.

Thanks everyone for replys really helpfull.waiting for a call from his pead as therr gonna see him in urgent refferal clinic as the gp said pead needs to refer to ent.

Hi summer, my dd2 had laryngomalacia - and yes, reflux from birth. Hers was diagnosed when she had RSV at 4 weeks and nearly died in hospital, at which point they spotted the noisy breathing and started treating her lying on her front (much easier for laryngo babies to breathe that way) and assisting her breathing till she got better.

GP fobbed me off with baby gaviscon till 8 weeks, at which point I took her to ENT and they automatically gave her Domperidone and Ranitidine, which helped a lot. She stayed on them till just over 14 months.

As her tonsils and adenoids were huge, her breathing got worse again as she grew and she had sleep apnoea and was losing weight - solids were hard for her. At that point we taped her asleep and played the tape to the ENT surgeon, who immediately ordered adenotonsillectomy and, during the op, also snipped the folds in her larynx to widen her airway: since then? Wonderfully normal, bar tendency to loud snoring

She's nearly 9 now, and we never looked back, but those first 2 years were very stressful...and the biggest thing I learned was to be the squeaky wheel, and demand ENT paeds for anything related to her breathing/feeding. I'm really glad you're being referred, the sooner the better as it really is the one place in the paeds world where the issues are understood and addressed.

Wishing you all the best with your LO, and honestly - it does all come right in the end