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My toddler needs a laparoscopy.

11 replies

Writerwannabe83 · 21/08/2015 12:02

Yesterday my 17 month old DS was referred for an abdominal laparoscopy which should be happening within the next few months.

Does anyone else have any experience of this?

I don't know what to expect in terms of how he will be afterwards or if we will need to stay in hospital for a few days?

I'm trying not to worry myself but I'm so upset at the thought of him needing a GA and having this procedure Sad

OP posts:
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LHReturns · 23/08/2015 22:46

Writer I have been hoping someone will respond as I cannot imagine anything more worrying than my 15 month old having to have abdominal surgery. I so feel for you...their tiny little bodies and soft skin!

If it helps even a tiny bit, I have had 4 laparoscopies in my life (all when an adult). The first two for endometriosis where within 2 weeks of each other. While the first 24 hours after each is uncomfortable due to the gas they put in to create space between organs, I have recovered so easily from each, and barely a scar to be seen (4 tummy holes made each time). I would have no worries about having another.

I am sure this is useless as you are asking about babies and this kind of surgery. May i ask if your son's is investigative only, or also for some treatment? If the former I bet he will be 100% fine within hours! His mummy might not be as cool as him though!

Good luck!

lavendersun · 23/08/2015 22:50

Not the same procedure OP, but my DD had a GA at 13 months (heart surgery), the GA was the easy bit for her. Not allowing her to eat beforehand was difficult though in all honesty.

I know it is hard but try not to worry. I am sure that someone with a similar experience will be along soon Flowers.

Writerwannabe83 · 24/08/2015 07:30

He's having his surgery for explorative reasons as he has a missing testicle Sad

OP posts:
LHReturns · 26/08/2015 19:35

Hi OP, an explorative laparoscopy will be very quick and genuinely termed minor from the surgeons POV.

So I guess they have a look around for the missing testicle...which I guess either they will find and then need to descend properly, or won't find one. Is that right?

While it must be horrible for such a tiny person you love to pieces, I also think this is fairly common? Was your DS premature?

Is that your understanding too? While a horrid idea for you, I don't think you should worry to excess. Easy for me to say, but gosh, just think how relieved you will be when it is over!!

Writerwannabe83 · 26/08/2015 20:08

He was born at 39 weeks by planned c-section. They were going to let me go full term but I was soooo uncomfortable towards the end they bought it forward.

When DS was born a neonatal surgeon came to see him as the midwife had noticed something appeared wrong with his scrotum but they told me it was a hydrocele which can be very common and to get the GP to recheck it at the 6 week check. At that check the doctor said yes, he has a hydrocele, it should disappear of it's own accord but if it's still there in 12-18 months then bring him back as he may need to have it surgically corrected.

I took DS to the GP at 15 months as his scrotum still looked uneven and I was referred for a scan. I and the GP thought it would be a routine scan to assess how much fluid was in the scrotum, I.e how big the hydrocele was, and then he'd be booked in to have it operated on.

However, after a very long scan the gentleman doing it broke the news that in fact there wasn't a hydrocele but that DS only appeared to have one testicle. It came completely out the blue and I was Gob smacked and a little upset.

I was then referred to a surgeon who physically examined DS and was confident there is indeed no testicle to be felt.

When DS was having his scan there was talk of there being some abnormally shaped tissue and that it may have been a testicle at one point but has since died.

The surgeon said there are three possible outcomes:

  1. A testicle will be found and pulled down into the scrotum.

  2. A dead testicle will be found and then removed.

  3. There is no testicle.

I'm obviously hoping for outcome number 1.

OP posts:
LHReturns · 26/08/2015 20:33

Ah ok.

39 weeks isn't premature (my DS was born at 38.5 by planned CS too)....I only asked because I understand that significant prematurity can increase likelihood of an undescended testicle.

When will the laparoscopy happen? I sense the uncertainty must be much much worse than any of the three outcomes above. It is easy for me to say this as it isn't my DS, but you will deal admirably with any of the above three scenarios.

An ex boyfriend of mine had only had one testicle his entire life, and it didn't bother him and certainly didn't bother me! He has three children now.

dontevenblink · 06/09/2015 10:52

Hi writer my ds2 (who's now 3) had this procedure just after his first birthday. It was picked up in the hospital after my c-section (at 39 weeks) and at the 6 months check there was still only one testicle so we were referred to hospital where the consultant gave us the same possible outcomes as you've been given. He also pointed out that the procedure was vital as if there was an undescended testicle and they didn't remove it that it could likely become cancerous.

We arrived about 8am on the day of surgery and after checks I think he went in about 10. I was allowed to carry him in to the room for the GA and stay with him whilst they did it. I'm glad I was there for him but it was definitely the worst bit for me as he screamed and tried to fight it, although they did tell me that he was one of the noisiest they'd seen for a long time (he still is stubborn!), so your ds may well be different. He went under really quickly though, and the staff were great.

He was in surgery for only about an hour if that and the surgeon came out to speak to us as soon as he could. They found ds didn't have a left testicle at all, and that they think it had disappeared very early in the pregnancy, which wasn't really the outcome we were hoping for, but it meant that it had been a quick procedure as they hadn't had to bring one down. They had made a cut in his scrotum to put a stitch in to keep the right testicle in place.

We are allowed into recovery to be there when ds woke up. He was very groggy but I was allowed to feed him straight away (I was still breastfeeding but I reckon a bottle would work just as well). He did get a bit upset as I think he was a bit disoriented but he soon calmed down and had a long sleep on me. The boy (who was 15 months) in the next bed was absolutely fine after his GA and munched his way through a whole lunch box of food when he woke up so I think children seem to react differently!

Ds recovered really quickly and we were allowed to leave hospital by about 3 pm so we were not in hospital long at all. DS slept a lot that afternoon and evening but he didn't seem to be in any pain. They gave us paracetamol just in case but he only had one dose. He was walking about everywhere the next day like nothing had happened Smile He just had a small dressing on his belly button and it healed incredibly quickly. You can't see any scars on him at all.

He had to go back for a check up at the hospital with the surgeon about a month after, who explained what he'd done again and even showed us the photos (bizarrely he even got me to take a photo of them with my phone as a record for us, which I'm not entirely sure why - I'd completely forgotten until I was scrolling through my pics the other day, luckily the DC weren't looking too Grin). He told us that it wouldn't affect him at all and that fertility should be at the same level as if he'd had two testicles. He did say that when he got to 18 there was the option of an implant but that he wouldn't recommend it as there was a risk it could damage the remaining testicle.

We were upset for him to start with, but he is completely healthy otherwise and I honestly can't see much difference between ds1 and ds2 (his remaining testicle is quite large too, which I think helps, we were told this often happens as it compensates for the loss of the other). I think people would have to be looking very hard to notice, which the surgeon pointed out why would they?

We are in New Zealand rather than the UK but I doubt there will be much difference (especially as most of the nurses were British). It was a lot quicker and easier for him than I thought it would be and DS bounced back incredibly quickly, you wouldn't have known he'd been in hospital by the next day.

Feel free to ask any questions here or pm me.

LHReturns · 06/09/2015 20:26

Dontevenblink I am so relieved someone finally posted who knows what they are talking about. I look at this thread regularly as I am so keen for someone to help the OP.

Your summary is fantastic. Taking your one year old into surgery must be terrifying. But he is clearly a wonderful little boy, and you have all moved on happily.

Entirely agree with surgeon..why would anyone ever study a man's balls in great detail? They aren't very exciting or pretty. And if one data point helps....my dad only has one testicle (always did) and he has three kids. My mum said she didn't even notice until they had been married for years!

Writerwannabe83 · 08/09/2015 10:02

That's reassuring LH, one of my main worries is DS's confidence when it comes to forming relationships. I know I shouldn't really be thinking about my son's future sex life but I couldn't bear it if he was ridiculed by girls and it leak all over school or college that he's only got one and be a target for bullies Sad

OP posts:
LHReturns · 08/09/2015 19:19

Of course you would worry about that OP! I would to. We all fear something that might make our children not feel 'not normal' in the future, and effect their confidence.

However I really don't believe this is one if those things. Putting your specific situation to one side, do you spend much time studying and counting your DP's balls? I don't. And when he is turned on they both shrink up so tight I wouldn't have a clue if there was 1 or 4 there....and I wouldn't care either.

Do you have a date for the surgery yet?

Writerwannabe83 · 08/09/2015 20:05

Not yet, no.

We saw the surgeon 2.5 weeks ago and that was when that decision was made to operate. We've got to be referred to another hospital to have the procedure so I guess things might take a little longer. The surgeon at our local hospital said the other surgeons may want to see DS as an outpatient first or they may be happy to accept the referral and book him straight in for the operation, I've just got to wait and see.

The surgeon I saw told me I should hear from the other hospital in a few weeks time so I'm going to give it another 2 weeks and then chase it up.

I would rather just have the date and get it done, all the waiting around just provides me with more time to worry.

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