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raised groin glands (7 lumps) in my 8 yr old boy.. worried sick!!

31 replies

lynnie2015 · 15/07/2015 00:34

hiya i dont know where to start really... after bathin my son back in march i noticed 2 lumps on the left side of his groin... my first thought was he had a hernia so i went off to the docs with him.. doc informed me that they was lymph nodes and he could feel 3 not two like i could see.. was told to take him back in 4 weeks if they hadnt gone down.. in the meantime my son continued to get more nodes come up but this time on his right side... (bearin in mind my son has not been ill for ages no cough,cold nothin!!) so i took him back to docs who checked him again and refered him to pediatrics... and for bloods. once we seen consult he didnt even check my son before blamin it on a virus!! his bloods he said was normal when infact he is borderline anemic and had low white blood count?? was told not to go back unless my son loses weight??? since then my sons nodes hasnt gone down and i can feel more comin up in his neck (very small at mo) he does however have intermittent night sweats that can make his bed and pillow really wet and he often gets bit short of breath.. ( he had xray was told it was normal... but there was a gland showin on his collor bone bit but he said that was normal tooo? is it normal to see lymh nodes on xrays??) he has also had few episodes of runny bum... doctors keep tellin me its nothin,,, but his nodes have been up since march (may have been there longer as i only noticed them in march) and still there now... one of them feels bout 2/3 cm long but i not sure if it a cluster close together or just one long one... gettin worried because he had no sign or symptoms of infection at all prior to this nodes appearin and i cant see a reason for why they have come up?? docs infuriate me as i have fibromyalgia, so they get sick of me goin and i feel like they think i wish my son ill!!... which i dont, i just wanna know why these nodes are there and why is more appearin??? i have no reasonin for why?? if he had been really poorly with a cold etc i would accept it was from a bug but why have loads come up in his groin... normally i would expect them to be up in his neck if it was a virus?? should i be worried??? cant get my head round it as i have no answers to why part from docs sayin virus... which they tend to blame it on when they havent a clue... he has just had bloods again and seein doc tomoz for results but doc only done a repeat a month later so apparently... i can draw a line under it .. to amuse me really!! think its digustin really as if it is a virus what virus is it then??? worried cause of lymphoma and know it can be hard to diagnose as it doesnt always show in blood dependin on type... am i bein silly and take docs word or shall i ask for second opinion??? if the glands had shown to be goin down i wouldnt worry but because more is there now and some bigger from march and i can feel tiny ones in his neck startin i cant let it lye!! specially as he wasnt ill with bug before hand!! all doesnt make sense.. surely glands dont just pop up.. there has to be reason for it?? please help and has anyone else had this with their child and what was the outcome!!

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Are your children’s vaccines up to date?
lynnie2015 · 22/07/2015 20:19

hiya just update... seen doc at hosp she was lovely, at the mo they runnin viral studies and doin a blood smear test to check for maligancy or something... if nothin found she gonna do scan on his tum as he has lots in top legs and groins (both sides) but she did find a bigger node in his neck that apparently seems to be the biggest and serveral small ones on same side... she didnt say size etc but if all bloods come back and nothin found she gonna scan tum etc to see what other nodes doin and go from there n do other tests, so still non the wiser at the min but feel happier because i know he bein checked thoroughly, if nothin found at all after all testin done she said she will keep seein him for a while to keep eye on em too so all good at min, just gotta wait for blood results and she has booked me in for another app for sept as she not about in aug, but obviously if anything shows up in blood or sons nodes get bigger or he becomes really ill i am to go back before hand. so happy mummy so far that its gettin sorted. Smile

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zipzap · 23/07/2015 15:00

So glad to see that you're finally in the system and being taken seriously, and that your ds is being properly investigated.

Keeping fingers crossed that they find it's something minor and treatable so that you know it's something and can be fixed, so you then won't have to worry any further!

lynnie2015 · 23/07/2015 18:45

Hope so. Prayin they find a virus as if not it will be more tests etc n dont really wanna put me boy thro it all x thanks for all you support you all been great x

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lynnie2015 · 30/07/2015 13:53

Well update on me boy . white count back to normal after 5 months n viral studies showin the had ebv at some point... strange as he had no sore throat or anything. glands are still up but hopin they will go soon... so all n all i feel relieved... does anyone know how long it take for his glands to go back to normal?? X will keep eye on em still as i know there is a link between ebv n lymphoma... but long as they go down n dont get bigger i be happy x x so one happy mummy today Grin

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highlystrung · 01/08/2015 10:15

That's great news - must be a huge relief x

MumofKings · 24/08/2020 15:00

Hi Lynnie2015,

I know this is an old post but my ds 5, also has a few unexplained enlarged nodes in his neck. Was wondering what was the outcome of your ds tests?

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