Eczema - Advice and support please!!

[MaisyMoo123]

Hello - I don't post much on here but I am well and truly at the end of my tether with ds's eczema and could really do with some advice and support.

Ds is 6 and has been suffering with moderate to severe eczema since he was about two and a half. It has been getting progressively worse over the past year and we're now at the point where it is really quite bad. He gets the eczema rash all over his body, complete with pussy spots and has sore patches pretty much everywhere but especially in the classic spots behind knees, insides of elbows and neck. He's never really had it on his face before but now has it on cheeks and eyelids. He looks a very sorry state and I just feel so incredibly sad for him. He should be running about care-free but instead he's constantly itching, crying from stinging skin and just really run down.

We moisturise at least 4 times a day - at the moment we use epaderm ointment morning and night and emollin spray through the day plus the usual bath emollients etc. We have regularly used betnovate too but recently switched to protopic - however this caused his skin to really sting and he was in severe discomfort so I haven't used that for a few days. His skin is no better or worse for it.

It feels like we've tried everything. Every cream, every remedy - everything! It just seems that no matter what we do, what cream we use and how often we apply it - nothing really makes any difference. We are never eczema free but we can't even seem to get to the point where it is even vaguely under control. We do everything we're advised to do - 100% cotton clothes wherever possible, non-bio washing powder, he's had allergy tests but still we battle on to no avail. It's heartbreaking.

I'd be really grateful if anyone has any experience or advice they can share on this. It all feels a bit hopeless at the moment.

Thanks for reading!

Sorry for the delay am on the coast with family. My experience is antibiotics to get the eczema under control but the bugs come back quickly, so then you try to keep the bugs under control with dettol in the bath for example. It does sting though I'm afraid. Dermol wash is less stingy but I don't know whether it is considered as good. I also find ointments, although shiny are better as they don't have the irritating preservatives that creams do.

Dr Aron changed our lives. www.draron.com

My son had eczema from 3 months all over his body. He couldn't sleep, was scratching and bleeding constantly. We tried everything the NHS could think of, and natural routes too.

6 months into Dr Aron's treatment and you wouldn't know my now 3yr old son has eczema, his skin looks perfect and we would never have achieved this with NHS treatment.

He charges a one off fee and does the consultation on email but don't let that put you off, join his Facebook group and you'll see the before and after photos. This man is amazing and my GP now prescribes the creams on the NHS and I mix them at home. As I said this treatment changed our lives.

All the best,

The patients of Dr aron have a Facebook group called Dr aron eczema treatment discussion group. Ask to join and you can see the before and after pictures of some of his patients.

Thanks Wishiwasrunning. I'll have a look at that sight. There are various 'miracle' cures online so I'm always a bit sceptical - especially when there's an upfront cost involved.

I've just spoken to the eczema nurse. Apparently she has about four other cases of children having extreme flare ups and she says it's due to pollen. Whether that's true or not, she's coming round to see us on Thursday to discuss how we might get things back on track. We've been here so many times before though.

Girlylala and Maltravers - how can you tell if there is bacteria present? Obviously if it's infected it's quite obvious but what about the bacteria? He has pussy spots but none of his open sore bits are particularly weepy.

Thanks again for your thoughts!

I can understand your scepticism, DM found out about him after he was featured in the telegraph. I did a bit of research and we were so desperate at that stage my mum gave us the fee (£80) and bought us the first tub of cream, we've never looked back. As I said, my NHS GP can now see how well it's working and we have the creams on repeat prescription. He's not in it for the money, but he does have a completely different approach and he gets the staph infection under control, the skin can then recover and the eczema disappears.

Best of luck I know how hard and stressful it is living with unmanaged eczema.

I will definitely look into it wishiwasrunning. We are at the same desperate stage you were at so I'm not ruling anything out! I have just had lots of people recommending different solutions to us so it's hard to see the wood for trees with it all. Your reports are definitely encouraging me to investigate this one further though and it sounds like an interesting approach. £80 would be absolutely nothing if it worked!

With me it's the chronic itch that's the clue to infection, it looks red and keeps breaking out, the steroids only keep it down if you see what I mean. This rather technical article thischangedmypractice.com/bleach-baths/
explains about bleach baths, dettol in the bath is the same principle and not quite so alarming. Maybe discuss with you consultant? Dettol in the bath was recommended to me by the nhs consultant, but obv your son's skin maybe different. I rinse afterwards incidentally.

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