Gastro related. Something wrong with DD.

[Madamecastafiore]

She is 16 months.

Breastfed until 11 months with no real issues.

She has never been a good eater of solids and over the past 5 months I'd say has become increasingly sicky.

We have been to the doctors and been told it's a virus, a bug etc etc...

To be honest I stopped going as felt that it just me being paranoid.

She reaching all of her milestones, is small boned, walked early and other than this sickness we have no other issues.

We all had a bug last week and the difference in her whilst having that has made me realise that this is an ongoing gastro issue rather than viral/bug etc.

It's almost like she can cope with a very very small amount of food at a time, a bowl of cereal or a packet of wotsits, couple of mouthfuls of an Ella's pouch. She can have milk or wet stuff if she has not eaten any solids but it seems that if she has solids they either take so long to digest or just do not digest that she vomits everything she has eaten up.

Our normal pattern is she eats normally all day and at bedtime she has her milk (changed to soya after tummy bug latest week and not made a difference) then either immediately or up to a couple of hours later she will bring it all back. (Everything from the day, or at least it seems that way, she must be keeping some down as she active and happy) If she manages to hold onto it it invariably comes back when she coughs, if it comes up immediately it is almost like she just opens her mouth and it flies out.

Immediately after this she is hungry, crying for food. Last night she came down stairs, ate a handful of Cheerios with some milk and hasn't, so far, been sick. She had a bottle of water and dioralyte and looking back I think this has probably stopped things getting serious.

It sounds stupid but I think it has just dawned on me that this is not normal. We have sort of lived with her up throwing up now and she does get better as we give her a very light diet the day after so it makes it seem sort of less worse.

But I've realised that this isn't normal and the doctor needs to take me more seriously.

I've looked at GERD and Pyloric Stenosis (family history on DHs side of this) but these things seem to be something that effects younger children and from birth and clear up a they get older so now I'm sitting here in her room terrified she is going to be sick again worrying that she has a tumour or something growing in her little body and that's why it's getting worse as she grows not better.

I should have gone back to the doctor yesterday but to meet her you would not be aware that there is anything wrong with her and I think it sort of makes me feel like I am being paranoid.

Does anyone have any idea what it can be?

Poor thing, and how stressful for you! I don't have experience or know what this could be, but I think I would trust my instincts and insist on a referral. It's a long time to worry about something and you know her best.

Madam if there's famille history of pyloric stenosis you need to explain this to your Doctor. Although with Pyloric milk would also be vomitted up. One of the symptoms is projectile vomiting and a failure to thrive.

She can keep milk down if only small amount and not had any solids.

MIL only told us about family history Thursday night and googling it it doesn't fit as normally younger babies (not something that presents at over 1) and more often boys.

If your Dr does not take you seriously next visit, maybe it's time to change your Dr?

My dd was allergic to dairy and soya (grown out of fortunately!). Lots of vomiting involved. Have you ruled this out?

Is there any chance she's too full and uncomfortable as a result?

Haven't ruled anything out but she doesn't seem to be any worse for having dairy.

She shouldn't be full from one pouch of food eaten at say 5pm and then milk 3 hours later.

It's almost as if anything other than v small meals, say an egg cup full or watery fluids can't pass through her.

Hi, I think it's worth asking referral to a paediatric gastro.

There are so many things it could be.

My first thought is lactose but as you've said dairy is ok.

My son has eosinophilic GI is ease, I'm not suggesting it's that but might be worth ruling out

She's always had a lactose free diet as was sicky when I stopped breastfeeding and I'm lactose intolerant so doctor suggested it so that's ruled out I

Sorry dd destroying kitchen!

So lactose issue ruled out.

How did you find out what your son has and do you mind me asking what the symptoms were?

Are you keeping a diary? Not down everything she eats/drinks and the time and everytime she is sick or goes to the toilet (again with timings) this will help you look for any patterns as well as give the doctor evidence needed for a referral. It will also help with any consultants you meet otherwise they might send you away until you complete a similar exercise.

My DS has numerous food issues, allergies and intolerances. GP initially refused to investigate but did see an allergist, immunologist and private nutritionist. As well as excluding foods that tested positive on skin prick, he also had a three day stool analysis done by Genova Diagnostics which identified a number of harmful bacteria and stomach acid imbalance which meant he was unable to break down food. Still investigating, aged 6 but I can usually identify the source of vomiting fairly quickly.

I started yesterday with the diary as a friend warned me this may be the case.

Little monster has demolished 2 pieces of toast with pure spread on this morning so far. She must be so hungry.

Do you think it's worth not giving her soya either or putting her back on regular milk?

I have to say that the upside to soya is it smells less revolting than cows mild when it's been in her gut all day.

Wow anotherday that sounds awful.

I do think I'm going to get the brush off from the doctor as DD looks v v healthy. DH can take her if that's the case though. The doctor seems to listen to him over me!

Can I ask what milk kids who are allergic to dairy and soya have?

DS has occasional rice milk, homemade almond milk but mostly we don't use milk.

I may have sound like its still bad... It's not really. He still has a restricted diet and I would like to reintroduce food rather than keep adding to the list. Last vomiting from food was probably over six months ago. He also reacts to chemicals and I hope if we fix his gut, the chemical reactions will decrease.

DS is allergy to dairy and soy and vomits if exposed to either. He also had a poor appetite before I really got top if it all. I guess he felt sick a lot of the time but was too little to tell me.

DS has almond milk, Koro coconut milk or Oatly milk which he loves. Rice milk isnt recommended for under 5's as it contains inorganic arsenic. None of these milks are suitable really as a replacement for cows milk as they are all the equivalent of semi-skimmed but it's worth a trial of dairy/soy free to see if that helps.

We were told to give fortified oat milk by dietician (oately brand)