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Children's health

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DS (13) throwing epilepsy meds in the bin

9 replies

InMySpareTime · 11/03/2015 12:54

I found out this morning that DS has been binning his epilepsy meds (Epilim Chronosphere) instead of taking them with breakfast. He only does it if nobody's watching, so I only found out because I emptied the bin yesterday and saw unopened sachets in the bin today.
He says they make the cereal taste weird, and he can't think what foods would hide the taste.
I got the GP to prescribe the tablets instead (although on a slightly short dose as he will only take the gastro-resistant ones) but wondered if anyone else has had this issue, and how they got round it.

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InMySpareTime · 11/03/2015 21:50

Anyone?

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Fiddlerontheroof · 11/03/2015 21:55

I don't know, but my dd is 12 soon, and really difficult about taking hers. She is on three different ones, and they are still all liquids at the moment, so I administer them. It leads to some right old rows :(

Shineyshoes10 · 11/03/2015 22:06

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InMySpareTime · 12/03/2015 07:17

Thanks, I phoned the community epilepsy nurse but apparently she doesn't work Wednesdays, hopefully I'll hear from her today.
DS says the flavour is so strong and not nice that he can still taste it even in hot chocolate, jam, honey or melted chocolate.
For now, he's back on the tablets and I'm watching him take them twice a day.

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theollys23 · 12/03/2015 14:22

I have epilepsy and I remember at that age and I would hate taking my meds partly because of the taste but even when they changed to tablets, I resented having to take themI'd do the same say I'd taken them even though I hadn't. If you haven't already try talking to him about how he's feeling towards his epilepsy. Hope I've helped x

InMySpareTime · 12/03/2015 15:04

Thanks, it's good to get a sufferer's perspective on this. I'm treading a fine line between letting him know I'm disappointed about the lying, worried for his health, and understanding about his desire for Agency over his medical choices.
I hope the community nurse can help get this untangled, because DS is fairly uncommunicative at the best of times!

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Shineyshoes10 · 12/03/2015 16:52

This reply has been deleted

Message withdrawn at poster's request.

theollys23 · 12/03/2015 18:04

Not a problem, let me know if I can help any more. Good luck with the community nurse.

InMySpareTime · 21/03/2015 11:13

We had a hospital appointment yesterday anyway, nobody had got back to us by then. She was great, talked to DS about his options re. Meds. She found a way to reduce his meds when he comes off them in September, without him having to take the ones he doesn't like, and she gave us a note for the doctor for a different form of the meds in case it happens again.

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