Just wondering if anyone has any experience of this? Ds1 (8) was diagnosed with a benign brain tumour last week and had immediate surgery to relieve the pressure in his brain. However the tumour itself is inaccessible so the treatment plan at the moment is just to monitor him with regular scans.
If the tumour progresses then his vision would be at risk (and ultimately his life)
He's also now at increased risk of seizures though he's thankfully not had this so far.
I'm struggling to get my head round this and wondering how on earth we can carry on as normal knowing this thing is there in his head.
And how much do I tell him- it's not the kind of thing we can keep secret but how does a child deal with this sort of diagnosis?
Any advice or pointers to good sources of information would be really appreciated.