Browns syndrome in 15 month old

[wobblybobbly]

Hi, I have a 15 month old baby with Browns diagnosed. I gather it's a rare congenital disorder which means that the muscle behind the eye which controls eye movement is not developed properly and there is nothing you can do to rectify it. She also has a certain tilt to her head (mainly looking down on us!!) as she struggles to move her left eye up or to an angle. As a result we are seeing late motor skills development too (no crawling or rolling). Anyone else in this position? Is there any information I might find useful before next orthoptist appointment?

She also has astigmatism on both eyes so will need glasses, no idea how we are going to keep those on her!

I have never heard of it causing problems with delayed motor skills .

Generally it's something which causes no problems atall.

The appearance of the eye not looking up properly improves as they get older and taller as they look up,less.

Hi Helen thank you for replying. It's good to know it gets easier for her.

It might not be the only reason her motor skills are delayed, but I have been told by both physio and orthoptist and consultant that because she has restricted eye movement upwards she can't lift her head to see well when on her tummy on the floor. She hates being on her tummy. The physio is working with me to try to get her to bum shuffle as that would be easier for her.

However, I am worried that they are giving me the wrong info. I have been told that she sees double at certain angles, that what will probably happen is that the brain recognises it's not getting good vision from the affected eye and effectively shuts it down so that we have to watch her 'good' eye closely to make sure it doesn't suffer. Do you have experience of the condition and does that sound right?