Ongoing pain, no fracture, wwyd?

[wewillmendit]

Dd is having investigations for juvenile arthiritis/Sjogrens syndrome and has piano in both her feet for several weeks.
Two weeks ago she had a nasty knock on her shin at school. I took her to a&e, she had it x rayed and no fracture, said soft tissue injury.
Since then she has been unable to put her heel to the floor, is crying in pain sometimes and is now saying that pain relief is sometimes bit effective. She is having ibuprofen and paracetamol.

At a@e we were given an ankle injury leaflet with exercises on which she has been doing when able. She is hobbling around at times, although she is still playing as well but is always guarded with that foot and even when running is not putting heel to the floor.

Dd is saying that it is the pain from the injury that is hurting her more than the other pain. I took her to GP today who checked the x ray report and advised to carry on and she will be reviewed at next rheumatology appt.
Dd was distraught when we came away from docs and is getting low with the pain. I feel like I am failing her, but don't know where to go from here.

All advice is really appreciated, TIA

*pain, not piano!

Go back to A&E and ask for further investigation? Or can you get the rheumatology appointment brought forwards? Call the clinic or the consultants secretary and explain you will have to go to A&E due to her high pain level
Hope you get some answers soon

I would ask for a review and re xray possibly. Fractures are not always spotted on the first take and may become apparent after a few days.

How old is your dd? My ds was 4 when diagnosed with systemic juvenile arthritis so if you want to ask anything please do. He's now in remission thank God.

We pushed and pushed and after 6 weeks of suffering night sweats, rash and painful joints, we were finally referred to gosh's rheumatology dept. stayed 2 weeks to eliminate all other illnesses and was put on the right drugs.

I would push for further investigations ASAP and not take no for an answer. It was the local hospital paed who finally referred us.

After dd being awake last night sobbing I have contacted GP. Was very assertive with receptionist, but it was only when I started crying that she agreed to speak with doctor. Am waiting for surgery to ring me back.
NK, dd is 9. Glad your ds has been seen and in remission. It's awful when they are in pain isn't it.

have you done blood tests? if she's in so much pain, something will be inflamed - her ESR and CRP numbers will be high (or higher than normal). when is your next rheumatology appointment? Have they given you any pain relief?

Yes she had bloods done, had letter last week to say all levels are ok. They gave diclofenac but it was affecting her stomach so it was stopped.
That is why I am thinking it may be the sorgens syndrome.

We went to a&e for referral to paediatric assessment unit. They have given her some exercises and are going to contact consultant tomorrow. Next rheumatology appt is next week.

But sjorgrens will also show inflammation raised markers i think. Does she have dry eyes etc?

Before we were finally diagnosed I had done a lot of research and narrowed it down to SJIA or lupus. I said so to the paed and ironically at one point the paed who saw us was also a rhurnatologist! And he ruled it out! My gp kept saying it was a post-viral infection. Well yes, but not for 6 weeks and counting, and not at this consistent rate, and not with 'no getting better' at all.

I was most unimpressed. But as it turns out SJIA needs a lot of tests to rule other things out.. Hence why it took gosh 2 weeks and lots of bloods, scans,the lot.