URGENT - lumps in 18 month boy groin

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Hi
I'm very new to this but I've exhausted every other option and don't seem to be getting anywhere. Sorry for the long post but please do read!

I first noticed lumps in my sons groin before Xmas 2013, he was around 10-11 months.

I wasn't too worried as they seemed small and as his 12 month check was coming up I planned to mention it there. Unfortunately I didn't make a list of things to ask and forgot - you know what it's like!

Anyway the months went by and I completely forgot about these lumps until they started to grow. They were now visible through the skin but only slightly. Further to this, I couldn't find his testicles - something I had felt before I'd noticed the lumps months before.

I planned to take him to be weighed that week so mentioned it there. I was horrified to hear that the HV recommended seeing GP for a referral for investigations and possibly surgery - I felt like I was to blame for it all because i had forgot to mention months earlier!

There is a large lump on right that you can see under the skin and a palpable one on left although not visible under skin. HV could feel left testicle but not right.

Off I went to GP - was told come back in 6 wk if they are still there. 1 wk later they had grown in size but the GP I trust the most was on holiday. I planned to go to walk in centre but with him being young (had this problem before) I thought it best to go straight to the hospital. We was there hours and saw doctors and surgeons mystified by this lump - they couldn't find either testicle and was concerned that that was the cause of the problem. They wanted to refer him to the children's hospital.

We waited 3 months til out appointment date. In the meantime (I want to point out) that the lump on the right increased and decreased in size, corresponding with being able to feel the testicle or not. I was advised by HV to take pics when they were having a 'big' day cause Sod's law all is well and good on appt day. I did this on the next 'big' day.

I mentioned this at the (2 minute long!!!!) appt at children's hospital. He said nothing to worry about every little boy has these lumps. Didn't seen too concerned about the testicle issue. I understand he's the expert and I'm not particularly doubting him. Just with both me and my mum being from an all girl family I don't know much about little boys bits - I'd like to know DO all boys have these lumps (glands apparently) which correspond with disappearing testicles?! Is this normal?! (I imagine not)
I feel at ease being told it's nothing to worry about yet I feel like I'm worrying more.

If it is only glands why did no other doctor come to this conclusion? Why does it correspond with his testicles being there or not?

The appt was 3 wks ago. We've had a particularly large lump day today so have taken another pic and taken to mums net for help! Please see attached image - this is from today!!! This is larger than when I took pics in prep for children's hospital appt.

Any experience with this problem with your boys?
Any help at all? Suggestions? Do I ask to be re referred and ask for further investigation?

Xxxxx

No my boy never has those. I'd be worried too. I'd push for re referral tbh

The day after I posted this I recieved a letter saying 'his mum was worried about the lumps' and 'his mum was concerned both his testes were not present' - yes I was worried but we were referred not because I was worried but because several other doctors and surgeons were concerned about it and didn't know what it was. I fail to see how in a 2 min appointment he knew what doctors before him couldn't work out, regardless of how qualified or experienced he is.
On said letter it said that care is now being passed over to gp. Thing is it's a waste of time me going back to the gp but it doesn't warrant a trip to the hospital. Would a trip to the walk in centre do for this?

Posting online isn't going to solve anything but really at a loss with this. Took him to see HV again to be weighed and mentioned the situation to her again she seemed to think that things just aren't right, but that we must respect the opinion of the specialist which I fully understand.

:-(

Nothing helpful to add but my 11mth old has small lumps, to be honest I just thought they were glands so I shall be watching this with interest and remember to mention it at his jabs!

Hernia ??

I know nothing medically, but the one thing that stands out to me is "we must respect the opinion of the specialist". No. You don't.

All your points are valid and you should trust your instincts until you're happy with the treatment you get.

I would go back to the GP and make a fuss. I would also talk to PALS as you can push the angle that nothing was explained and you got two mins after three months with no clear answers to yours and other professional's concerns.

OP whereabouts in the country are you? I paid £300 for my DD to see a private paediatrician who spent an hour examining her really thoroughly and found something wrong with her heart. I'd been fobbed off by the NHS and when she was 8 months old I had enough and took her privately. They've been amazing, appt within days and on one occasion on the same day. I know not everyone can afford this and that I'm very luck that I can, but I would gladly PM you the details of this very lovely practice. Instinct is so important and I agree you shouldn't just take a 2 min consultation and a patronising letter.

DS2 had lumps like these, both sides, but also backs of knees and just about everywhere. They were swollen lymph nodes (glands) and apparently linked to his eczema. They swelled when his eczema flared. He's 13 now, pretty much eczema free and completely lump free.

My DS had a lump at this age, top of his leg on the inside on his thigh.

I mentioned it in passing to GP when I had an appt. She said that boys get lumps!! But that she wanted it checked.

Next thing I know I have a letter saying surgery was required. It was quite stressful at the time.
DS went into surgery & had it removed. It was a fatty lump! Apparently boys get lumps!

So, please don't worry. I know it's easier said than done.

DS hasn't had anymore lumps at all x

Just to update from my earlier post, I was in A&E with my boy last night for something unrelated and I asked the dr to take a look at his lumps and he said they are fine, they are just lymph nodes. He said as long as they aren't swollen they are fine..maybe another question to ask?

I'm posting with a GP hat on- they're lymph nodes as far as I can tell and very unlikely to be related to his testicles. As a PP said you can often see them getting enlarged when the body is reacting to some kind of illness or inflammation (like eczema). As long as he is well in himself, eating, putting on weight etc I wouldn't think they'd be a problem in themselves. If concerned I might run a blood test just to rule out infection/anaemia etc. Have you had any done?
I'd be more concerned about the testicles TBH- are they there or not? If the doctors think they aren't your DS should probably have an ultrasound to check.
HTH x

I couldn't find this post when I wanted to reply months ago and I've only came across it today after a 3rd unsuccessful hospital visit.

I was told 3 months ago at another hospital appointment re the lumps that they were glands and should be gone before my next appt in 3 months time (which was today) and that id probably need to cancel the appt. lumps are still here and today the same doc decided that because they come and go in size they are not glands (???) she was the one who told me they were 3 months ago!!!!!! She actually said it was glands but that the increase and decrease in the 'lump' size was probably testes and that he was ok to be discharged. So I've gone home and thought about it and searched for this post to see what you lovely people suggested originally.

We have had blood tests and urine tests which returned fine. My question now is why if it is his testes has he been discharged? It just seems that nobody is absolutely certain. Mind, she seemed dead set 3 months ago that it was gland and that they'd be gone by today's appt but seems to have changed her mind....

Sorry for the long post I'm just not getting anywhere in the sense that we haven't been given a definite diagnosis to the problem yet hes been discharged....

Bump

Do you find out what is that lump yet? My 5 years old daughter has that lump also, looks the same to your picture and the same right side of her groin. Went to children's hospital dr said is looks fine to him. But i still worry. Did you son pain around there? Was that lump firm or soft and movable?

My son 13 months old has lymph node groin area for a months now. Stay the same size. We did blood work on Friday, should get the result by Monday. His pediatric said it could be from bacteria or virus. He had MMR on 5th Jan and got fever and cold following week. How about yours?!

My daughter Had her mmr shot last year at 12 months and I noticed a pea size lump on groin area and doctor said it was from having her vaccines but it’s been a year and the lump is the same size, she has been seen by 4 different doctors and they all say the same thing as long as it does not grow or change.

Hello, I was wondering if anyone ever figured out what these lumps are for sure? I have a 14 month old girl who has one that looks identical to the picture. It is a random knot on the right side of her groin area. It does not seem to be painful at all. She did have her 12 month vaccines last week.

Hello my 18m old boy had the exact same lump, He was told its called ITP a blood dissorder which caused it now they changed their minds and are testing him for the following
TB, CAT SCRATCH DISEASE, TURMOLIN, SYPHILIS AND HIV please be aware these are all precaution tests which have to be done neither parents have HIV apparantly babies can be born with either. I have been reading up on Tuberulosis lymphnode and it seems to be giving me everything my child has which makes me think its infact this... we had the skin test for tb today and go back thursday... my boys left testical is also up inside not dropped down yet he is meeting surgeons to have it bought down as it puts them at risk of cancer. Please go to your childrens hospital and ask for tests to be carried out, you want an ultrasound of his lymphnode and you want blood tests done. please dont let it pass

We will be having biopsies taken og the lymphnode and surgery to bring his testicle down. I will give regular updates but if you have these lumps in the groin push for answers you need to be seeing immunology drs

Neither of my sons have had these lumps.

My daughter had a little ear infection, no fever so the doct told me she could giver her her vaccines since she doesn’t have a fever , the gave her two on of each tighs and intibiotic for ear infection a week later i was changing her diaper and found a lump on her groing , went that day to the doct and told me she had trush on mouth ,and that her lump its not big enough for concern . To wait a month and to just monitor her bump, but i been on the internet and my anxiety is off the roof , she already finish her trush medicine , and its still there .. what should i do .. all i see in the internet is lymphoma .. and i just all kinds of emotions

My little boy (4years) has these either side of his groin, 1 bigger than the other.
Interestingly when he was a baby he had 1 testicle that was hidden & we saw a specialist that said once he turned 1yrs if it had not dropped down, to return. It did drop down and we can feel both now, but he does have these 2 glands either side that are always visible - probably 1cm size. The doctors have said if they've always been there then that's the way he is. He has one in his neck too.

Can anyone who’s experienced these in the past let me know what the outcome was? My little girl has the exact same lumps in the same place. She had her injections three weeks ago and they showed up a week after. I thought they were linked but the lumps aren’t going anywhere and feel quite hard!! Going to take her back to the go I think but Thought I’d seek help on here too?
Thanks

I have this lump on my left side in my groin area.It has passed 8 days and still I cannot see any movement. I am worried that it could be cancer, or something more serios. I am 25.
Any advices?

Hi my DS 15 months had 2 little lumps at each side were your childs is I found them 4 weeks ago I took him to my Dr she said if there there in 2 weeks time to take him back 2 days later I was changing his nappy and found another lump further down more near his groin so I cried took him staright down to a&e I thought he mite have a urine infection so they tested his urine completely fine she checked the lumps and she said to me she had never seen anything like it so she got the peadatrician to take a look he said there swollen lymphnodes that he thinks his fighting infection bearing in mind my little man hasn't been ill at all so I was oh ok peadatrician said to me he isn't worried cause his still eating drinking and putting on weight last time my son had been weighed he was 5 weeks old scandalous I know so they do not have a clue I know his lost weight but I put it down to been more active walking ect anyway they took some blood tests from my little man cause they wanted to rule out if it was definitely infection
So they took his bloods sent us home
They said they would give me his results same nite
So I got him home bathed him ect and just sat at side of my phone well pacing up down the room
I got the phone call and she said his got gasrestinteritrs witch I thought was odd has he hasn't been ill but they wanna do more blood test in a few weeks time witch is coming up to go on baby ward
Now it's been 2 weeks the lymphnodes are still there swollen moved in different places has alot more than what he did and another lumps appeared so off to the drs I go tommorow I will not be moving until they give me answers
Please please go with your mother's instincts
Hope you get your child sorted
Hope it's nothing
🙏🙏🙏🙏

Sorry I mean now it been 4 weeks there still there more coming even tho he has atopic excema and under dermatology his the most happiest little man always got a smile on his beautiful face never lets anything get to him xx