Are your children’s vaccines up to date?

Set a reminder

Please or to access all these features

Children's health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Glue Ear misery

15 replies

HedgehogHairbrush · 22/06/2014 10:54

DD is due to start reception in September and I'm really worried about how glue ear is going to affect her.

She has had repeated ear infections, both bacterial and fungal (urgh) and perforated ear drums each winter since she was 1. If anything, the frequency/severity of infections has reduced as she has got older, but the impact on her hearing seems worse.

She has had a couple of hearing tests and each time the appointment comes as we're coming out of a bout, so she has had some hearing loss but not significant for conversations apparently. We have never been referred to ENT. We are currently waiting for a hearing test again.

She has no speech issues but she shouts all. the. time. She seems to have no concept of the level others are talking at. She shouts at us and then gets frustrated as she thinks we're not replying, particularly in the car or from room to room. We have started shouting to be heard and all in all it feels like communicating with her is a loud and frustrating task. I am trying to encourage her to look at us when she has asked us something so that she knows we are replying. I make a real effort to make eye contact etc when talking to her. She has the TV and cds loud, but finds things like a school play for eg (no sound system) hard to follow.

I'm really worried that the hearing tests don't seem to show a problem that we notice so much and therefore we're not able to offer her much help. Could the shouting be learnt behaviour that she can't stop once her hearing comes back? Does she do better in hearing tests because it's a quiet environment and she's concentrating, or does she have some sort of behavioural issue with listening?

She is doing really well at nursery, manages to communicate with friends etc but I think the environment is different to school in that there will only be one teacher and no key worker etc who passes on or reiterates information.

OP posts:
Are your children’s vaccines up to date?
Pobblewhohasnotoes · 22/06/2014 13:32

Why has she never been to referred to ENT? It sounds like she should be.

HedgehogHairbrush · 22/06/2014 13:38

Our GP has a real aversion to any referring for anything at all. The hearing tests have only been via the HV. The GP has treated the infections with antibiotics, and always asked us to come back a few times to check the perforations are healing but whenever I've asked re further management he has said that it would need to go on for longer each time or they wouldn't see her. It's the cumulative effect I'm more worried about.

Things seem to be coming to a head with other people noticing her lack of volume perception and my worrying about how she's going to manage in school.

I guess I should wait for the hearing test before going back and asking for referral?

OP posts:
Pobblewhohasnotoes · 22/06/2014 13:48

Well I'm an ENT nurse and have to be honest I disagree with your GP. It's obviously been affecting her life for years.

Can you see a different GP? There may be some guidelines somewhere that you can use to back you up. I would be firm.

HedgehogHairbrush · 22/06/2014 13:57

Thanks Pobble - it's good to have a knowledgeable opinion. I am probably guilty of not being firm enough and not advocating properly for her. Things just trundle along for a while, then I go back, they reassure me and tell me to wait a while, we trundle along again etc etc. I saw a new GP last time and she said to wait again but did say she'd be happy for us to come back. Is it worth waiting for the hearing test first or trying to do them side by side?

OP posts:
Pobblewhohasnotoes · 22/06/2014 14:19

If you get referred to ENT they will do hearing tests anyway, they'll send you to audiology.

When are you getting the next hearing test? Is it soon? Recent results would be useful.

HedgehogHairbrush · 22/06/2014 14:27

I was told July so think it will be soon.

OP posts:
turkeyboots · 22/06/2014 14:27

Ds was refered to ENT via HV and audiology. We never saw the GP for his glue ear. I'd ask for a referal from HV if you get nowhere with GP. Ours was very sympathetic on the developmental impacts of glue ear.

HedgehogHairbrush · 22/06/2014 14:37

Mine has always been helpful too - I'll give them a ring. can the audiologist refer if they feel it's necessary?

OP posts:
HedgehogHairbrush · 22/06/2014 14:44

Was ent gelpful turkey? Hope things improved.

OP posts:
turkeyboots · 22/06/2014 15:47

DS didn't have ear infections thankfully, but was rather deaf due to the glue ear. So he had grommets put it which have been great. He now speaks and can hear normally - he's got lots of catching up to do to his peers still but is on the right track now.

HedgehogHairbrush · 22/06/2014 21:02

That's good news turkey, am glad to hear it. Dd has no speech problems on terms of vocab or clarity just volume and turn taking etc.

OP posts:
Mini05 · 22/06/2014 21:17

My son had glue ears from the age of 2. Constant ear infections, where it would run from his ear. I must say his speech wasn't good saying things like gag instead of dad ummy instead of mummy.
Gp sent us to ENT, where they did ear test for a while. They then divided to put grommets in. Last of the infections! And some speech therapy

incywincyspideragain · 23/06/2014 22:40

Sounds like you need a referral of only to reassure you and discuss what can be done. I agree the audiologist can refer you or see a different GP

In mean time these may help www.nice.org.uk/nicemedia/live/11928/39633/39633.pdf
NCDS also has good advice and parents forum www.ndcs.org.uk

Quangle · 26/06/2014 21:49

Yes to ENT. DS had to fail three successive hearing tests to be referred for grommets. He only failed two of them so they said no. But hearing loss wasn't his main problem - his was completely chronic infections meaning 15 sets of antibiotics in one year, multiple drum bursts and in the end a daily regime of antibiotics - literally every day for a year.

I cried in the consultants office until he agreed to bend the rules and in the two years since the op, DS has been completely well. It turned our lives around but we had to fight for it.

Memphisbelly · 26/06/2014 21:58

I had a gp not want to refer my ds to ENT, someone at Homestart said to just say you want a referal. I asked, he got me an appointment for two weeks later and unlike the HV hearing tests that came back normal he came back as having such bad glue ear one ear he couldn't hear out of at all and they actually worried he may need a hearing aid.

Four weeks later he had grommits and his hearing dramatically improved, he couldn't say certain letters but within 24 hours he could, it was amazing. He was also a lot quieter after having it done Grin

New posts on this thread. Refresh page
Swipe left for the next trending thread