Sorry, me and craniosynostosis again

[tmae]

Hello, I posted a while back, but I think it was before we could attach pictures. My son (4 months old) was referred to a paediatrician in case he has craniosynostosis. Both my cousins boys did, and my DS has a ridge down the centre of his head, and from the middle backwards his head is quite pinched in some places and very angular in other places.

Sorry to post again, but I saw my GP yesterday as I was told the hospital would see me again in a couple of months and I still have heard nothing back. I hate to keep going on about it, but it is on my mind a lot at the minute.

Also, I don't like posting pictures of my son online, but there are a couple that show his face and display some of the characteristics, so I'm just going to have to I think. (I'm not quite sure why I typed this out!)

And these

Not a doctor but my ds2 has a mild form of metopic craniosynostosis so I know a bit about it. From the pictures you've posted it does look like some sutures are closing earlier than the average. This is more common than you think and your ds is at the age when it's most noticeable. My ds2 has a very bumpy skull (as do my dh and MiL) but now this is invisible under his hair. You honestly can't tell unless you feel. So yes keep an eye on it but quite possibly no action will be needed. Also this is a slow developing condition so yes you do need a hospital appointment but it is not something that depends on urgent action.

I do get that you are worried (I was in pieces initially) but please don't let anxiety spoil this time with your baby like I did. If needs be craniosynostosis is treatable but a lot of people have bumpy heads - check out bald old men sometime.

PS he's very cute (and now I am broody)

Thank you! I'd really stopped worrying about it much after my first appointment as his head had stopped growing very rapidly, but the more I see other babies, the more I realised his head didn't look the same (it culminated in me sitting in the play area at baby clinic subtly wiping tears away as I looked at all the other babies and then at my DS whilst trying to act casual!). I think it was the dread of him needing surgery that was scaring me most, the panic of him undergoing that, but if that isn't necessarily a given then that is a massive relief.

Ha ha! Thank you, I am permanently broody since having him, I'm slightly concerned that I've inherited my Mum's broodiness as she always was and had six of us and no doubt would have continued!