Ds was admitted as an emergency case earlier this month and sent home, after being stabilised, with notes saying that he needed surgery to prevent long term side effects from his condition and that this was needing to be done "soon" as the chances of long term damage increases with each passing week.
We were told that meant he'd be called back to the hospital for this in 4-6 weeks.
Now I find out that first of all he has to have an outpatient appointment and 3 weeks have now elapsed but "not to worry" we should have an appointment in a few more weeks. Then he is guaranteed surgery in 18 weeks to meet targets. (18 weeks from the outpatient appointment not 18 weeks from the date he was previously admitted and diagnosed).
So, we're looking at getting the op in about September/October just as starts a new school year, totally disrupting his schooling. (Either that or we'll have to cancel our family holiday if he is fortunate to have it happen sooner than September but I very much doubt he'll be that lucky).
How can I sort this out. When in hospital they stressed the need for the procedure to be done soon but now discharged we are at the mercy of "the system" and no-one seems to think it is that important, because I'm dealing with admin staff/secretaries all the time and it just seems to be a routine referral as far as they are concerned. I don't want to make a pain of myself but I can't help thinking if it was their child they'd have been seen and operated on by now.