Unilateral hearing loss please tell me about your experiences.

[sammy90]

Hello, I wanted a post that talked about this subject. As I have a daughter of 23months who was born with the single sided deafness. I wanted to hear from other parents, what experiences that you may had or have with your child's behaviour, or maybe other illness that have co-insided with the single side deafness as my daughter may have Facial nerve palsy a Damage to the facial nerve either upper motor neurone (umn) or lower motor neurone (lmn) produces weak muscle of facial expression. This is due to her single sided deafness but the doctors have not told us what the nerve weaken is or why they think she has this, as her facial features are normal and no one can see anything that gives us a sign. At first we thought its because we are her parents and that's why we can't see what the doctors are telling us. But when talking to a health visitor nor could they see it. My daughter does a lot of head shaking lately, it comes a bit like its an un control movement. Also holding head fingers in her ear.
So any advice please or related stories are welcomed

My dd has sensori-neural deafness so a bit different and very rare, comes and goes. I do know that any hearing issues can present with tinnitus so maybe that is bothering your dd? There are things that can be done to help her cope if that is the case.

Depending on your area you can have a peripatetic teacher come to your house to work with your dd until she starts school, can be a big help depending who you get and good fun for dd.

The local deaf groups for kids are often really good and do lots of outings etc give you a chance to meet other parents and for dcs to make friends.

I spent a lot of time on the NDCS forums when dd was first diagnosed and it was very helpful. I also have a friend who has been deaf in one ear his whole life and wears a hearing aid on the other but has done very well in his career and communicates really well, lots of lip reading sometimes but manages fine.

PM if you want to, you sound like you are doing a great job and don't be put off going back to the consultant/audiology department and asking more questions if you have them.

Hello my Dd whos 4 was diagnosed last September with uni lateral deafness in her left and wears a single hearing they think she was born like it. She failed 2 newborn hearing test and the 3rd one was done by an audiologist and we were told everything was fine so was shocked when we found out.
It was her preschool who picked up on it as She wasnt listening and seemed in a whole of her own.
She gets very very tired easily and Im worried as she starts Reception this September.
She also started doing funny head movements and does pace the room alot and seems to have no volume control but has a teacher of the deaf at school she is making friends and progress.

My teenage daughter has conductive bilaterial sensi-neural deaf-ness. She has had this since she was two after many infections and grommets which help for glue ear.

When we moved, she was first to be thought unilateral but that's changed after both ears went worse as she grew and she needed an FM system.

Your DD will miss some things.. (obviously) and especially end or beginning of words. Depending on the severity of your daughter's deafness, she may not hear high frequencies like ee ii or low frequencies mm aa oo uu. May mistake My daughter can't hear the highs and can't hear in busy surroundings and they don't have to be so loud for not to hear - even two people talking elsewhere can have an effect.

My daughter's inner ear is pretty damaged so she has tinnitus often. The inner ear has hair and if they're short or damaged, they're going to move and make shushing or low mmm sound. To block it out, she would of course try and put fingers inside but it'll still hum.. or shush regardless.

Thank you all for ur replies, they have been all so very useful to me and it's great to hear what or how it's effected one, so if someone experienced certain habits or behaving problems due to this disability, I may end up experiencing with my own daughter which I would understand where it's coming from. Which the consultants won't tell me anything. Thanks alots