Is your child taking desmopressin?

[NickNacks]

If so please can you tell me your experiences with it? Any side effects? Has it worked? How long have they been on it? Any regrets?

Ds2 has started on it this evening so all a bit new to us at he moment.

Thank you. :)

Bump :)

Hello NickNacks, how did your ds get on with it last night? My son was also prescribed Desmomelts and I have no regrets about giving him it. It meant that he was reliably dry for the first time ever and he loved that feeling. We had to be very strict about his drinking habits and bedtime routine which he found hard to begin with. He had no side effects and took it for about 2 yrs with little breaks to check if he was dry without it. He is 11 soon and only takes it for sleepovers and scout camps etc. At home he is wet about once or twice a month, usually because he has forgotten to pee before bed! I hope it works as well for your son, it really made a difference to mines confidence (and my electricity bill!).

Dry!

First night ever :) he's so proud.

As you say, we need to get in to strict evening routine, which it mostly is but needs incorporating the meds, weeing and drinking without thinking too much. He sleeps around 11hours at night so we've been warned that it might not work in the early hours, but I'm hoping that he'll learn to start waking for that wee.

He's off on a school residential trip in a few months and excited by the prospect of not wetting whilst there.

And I'm looking forward to the drastic reduction in laundry. :)

That's brilliant! It's such a good feeling when they are so proud. Getting the drink/wee/meds timings soon becomes second nature but I remember feeling a bit anxious about getting it wrong to begin with. I hope your son has a lovely time on his residential.

It was only a little effective for our DD unfortunately. Some weeks it seemed to be making a difference, some weeks we'd be back to square one and she was as wet as if she wasn't taking it.

We had more and more advice from the clinic (no brown/acid drinks, no milk, nothing after 6 - tricky when she wasn't falling asleep til gone 9 or 10) and in the end we stopped going back, she stopped taking them and we just waited it out.

She's nearly 13 now and it was just a matter of waiting for her bladder to be mature enough. She only has a little trouble at 'that' time of the month now.

Thank you hudyerweesht

2kids did your dd go up to the double dose? We've been told if this doesn't seem effective we can double the dose.

My ds2 is only 7 so we know we could still have some way to go but first signs are good.

We did try double the dose. Still only a little effective.

Good if it seems to be having some effect for your DS.