DS4 is 6.5 months. He had a cleft lip and palate diagnosed at the 20 week scan. When he was born he was diagnosed with hypotonia and mild ventriculomegaly. The paed said not to worry we will keep an eye on it. He has had his head measured every month and had another MRI last month. The results are back and the ventriculomegaly is worse. He has been referred to the neurosurgeons and I'm panicking.
When he had his cleft lip repaired he wouldn't wake up for ages afterwards and spent a few hours in HDU. He has got to have his palate repaired in March which I'm dreading and now they are talking about more surgery. He had his last 2 MRI's done without a GA but that won't last much longer as he gets more wriggly.
Also I'm due DC5 in July (very much unplanned, DH had snip booked). I don't know how that would even work as presumably DS4 will be needing surgery to treat the ventriculomegaly when I have a very young exclusively breastfed baby as well.
We have had to tell our families and got the usual tactless responses.
Has anyone elses child had this? I've googled (yes I know, I shouldn't have) but I've only seen stories about babies being diagnosed in the womb and either resolving on their own or the pregnancy has been terminated. DS4's ventricles were normal in pregnancy so it's different.