Please can someone share positive stories of Hirschsprungs disease? Ds who is almost 2 has just been diagnosed this morning after waiting nearly 5 weeks for his biopsy results. He's had problems since birth, but on the scale of Hirschsprungs must not be the most severe form as we manage it with medicine although he's had a few hospital admissions. What happens next? Has anyone been through this?
Got to wait for appt now to go back to see surgeons at the childrens hospital just want to know what to expect next. Am still in bit of state of shock even though I knew it might be diagnosed.