Oh I'm so scared. DD started having seizures in February this year, totally out of the blue (apart from one six year ago) so she had an EEG which suggested features of epilepsy - focal and generalised. She then had an MRI, which came back clear.
Except it wasn't clear. Over the summer DD has had more and more seizures, despite being drugged up to the eyeballs. A couple of weeks ago she was the worst we had ever seen her, consultant said she was having'non-status convulsions', so apart from the fits we could see every two hours or so, when I thought she was then sleeping them off, apparently her brain was still fitting. She then started with absences, delusions, memory loss, confusion and basically a total personality change.
Sorry, I was waffling there. While she was in hospital this time, they did another MRI, which has identified something on/in her brain. So they went back and checked the last scan, and yup - it was there as well, but really small so they missed it. They only found it this time because they knew where to look from the second scan.
So tomorrow she is having a contrast MRI, to check "tissue density" and what effect this is having on how her brain is functioning.
I am absolutely terrified, have fallen back into a depression that I had been working so hard on beating, and basically want to run away and hide and pretend none of this is happening.
I have ummhed and ahhed over posting tbh, as I'm not that great at social interaction, and fear that posting may be a step too far for me as well as the worry that no one will reply but I'm sitting here in the dark so so scared about what tomorrow will bring and just needed to off load a little.