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Really struggling to deal with Encopresis!

10 replies

TreeHuggerMum1 · 25/08/2013 19:47

Hi all.
My son is 7.5 (8 in Nov) and suffering terribly with Encopresis. We've seen a couple of GPs and the general consensus was laxatives - we are taking regular Movicol which seemed to help for a while but the last few weeks have been horrendous and I don't know what to do.
My husband think its behavioural but I can see how a little boy would do this on purpose!
It's been going on for months and months now and it's so hard to remain upbeat and slap a smile on my fave while constantly wiping bottoms and throwing away masses of soiled / stained clothes!
Help!?

OP posts:
Are your children’s vaccines up to date?
reup · 25/08/2013 20:01

My ds is 6.5 and suffers from this. Is on movicol and was referred to Local hospital then Great Ormond street. Has various procedures to rule out anything medical and is currently seeing psychologist there.
Apart from a blissful 3 months last yr he never takes himself for a poo. So the way we minimise accident is to make him go after breakfast and eve meal. Within 20-30 mins is ideal but we don't often manage that. He only has v slight skid mark type accidents now.

He does often make a fuss about going even though he plays with an electronic game in there and doesn't want to get off! The osychol

reup · 25/08/2013 20:03

Posted too soon. The psychologist is helping with him being angry I think.

Did your ds used to have more normal bowel habits?

TreeHuggerMum1 · 25/08/2013 20:08

He was difficult to toilet train and from toddler age would hide behind sofas, curtains etc to poo in his undies even tho he was wee trained well.
He's always been a bit mucky I guess but the last 12 months have been awful.
Finally got him to see a gp in may and things slightly improved but they're getting worse by the day at the mo.

OP posts:
Levantine · 25/08/2013 20:16

I would ask.for a referral to a specialist paediatric service in your shoes. I think you need more support than a gp can give. Have you tried ERIC¿ can`t link as pn phone but worth a google.

Levantine · 25/08/2013 20:20

I would ask.for a referral to a specialist paediatric service in your shoes. I think you need more support than a gp can give. Have you tried ERIC¿ can`t link as pn phone but worth a google.

reup · 25/08/2013 21:20

I have to say I found Eric very depressing. There was lots of good info but all the posts seem to be full of children much older than my son who still had the same issues so it gave me little hope.

TreeHuggerMum1 · 25/08/2013 22:02

I've had a peek at ERIC and a lot of it seemed to be written by children.
I'm keen to find out more about the dietary changes, like cutting out dairy or wheat etc.
Or homeopathic remedies...

OP posts:
reup · 25/08/2013 22:12

They did blood tests at hospital and it came up with a score that suggested dairy intolerance and we did 8 wks dairy free but it didn't help and tried 8 wks wheat free too.

Sadly neither helped. The hospital psychologist was keen to find some sort of trigger as to why my ds regressed after 3 months normal toileting. Is there anything that could have triggered yr sons? I also saw a school counsellor who was asking similar questions and she recommended play therapy.he's on the waiting list.

reup · 25/08/2013 22:14

Have you read the sneaky poo story? Its not helped us but its used by hospitals.

PJ67 · 28/08/2013 22:52

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Message withdrawn at poster's request.

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