Is there any support for asthmatic children?

[Rachelbloy]

Hi there I'm new to this site so please bare with me.

My daughter is 18 months old and has suffered with chest infections since being 5 weeks, we finally got a diagnoses of asthma and inhalers, currently awaiting on our hospital appointment.
I feel as though my doctor just doesn't listen to me, I've had to fight tooth and nail for all the treatment she's had so far and that's only because I took reinforcements with me to doctors appointments.
My question is, does anyone know if there is support out there for asthmatic children, like support groups that are local to Cleethorpes/Grimsby area, I feel like no one understands, she coughs throughout the night and both of us are exhausted and I'd love to go somewhere where we feel we're being listened too
Thank you in advance

Should say that our many hospital visits in the early years, were dealt with well.

Generally now they won't diagnose until at least 3 because so many children suffer with "viral wheeze" when little it would lead to a lot of misdiagnosis. The important thing is treating the symptoms really. DS was diagnosed young but he had a massive history which led to that point.

Hope she is better soon

Really Sirzy?
All the ones who were diagnosed with "bronchilitis" went on to be diagnosed with asthma.
If you ask me, for my non medical person diagnosis, it should have gone the other way by now ie diagnosis of asthma by 18 months at the latest.

There is no proven link between bronchiolitis and asthma. There is some evidence of a link between those who get it severely more than once and asthma.

There is no point diagnosing something at 18 months that they will most likely have grown out of by the time they are 3. Really it makes much more sense to treat the symptoms without labelling it until a point when they can be sure what it is.

Are you a medical person Sirzy?

No, just going of what I have been told by the respiratory consultants who have treated DS since he was 6 months.

If I am remembering correctly, I was told that bronchilitis is the term for asthma that cannot be called asthma until 2 years old. which I always thought was stupid. Just call it asthma

Told to me by a doctor or even consultant, cant remember which now.

Bronchiolitis is a virus caused by RSV, most children get it at some point but for most it just causes cold like symptoms for others like my DS it can be very serious - he spent a week in HDU when he had it the first time and nearly 2 weeks in hospital.

www.mayoclinic.org/medical-edge-newspaper-2010/apr-23a.html

Mine got called broncilitis so many times, that me and the doctor just grinned as they were coming up to two, and knew it would then be changed to calling it asthma.

They are two different things though bronchiolitis is a virus, asthma isn't!

Mine with asthma were and nearly always are caused by colds.

I didn't mean to start conflict on here, even though I had asthma from 13-19 (grew out of it) all of this is very new to me. DD dad almost died on a few occasions as a child from attacks and to this day still suffers. DD discharge papers from hospital state Primary diagnosis: viral wheeze. Secondary diagnosis: asthma, because DD is 19 months old the consultant was very * wink wink she's asthmatic*

Believe me I wish this wasn't the case, Thursday evening/Friday morning I cannot tell you how many times I cried thinking "if I ever lose you this is how" my heart broke

Rachelboy, it is not conflict.
I see the wink wink, she is asthmatic still very alive and well after 20 years. Ridiculous state of affairs.

I too remember the early days, when information was scarce.
You really need a doctor you can rely on.
Dont use the doctor that is not listening to you.
See if you can get that woman doctor again. If not, find a reliable doctor elsewhere. It really is quite important.

There was a doctor a while ago that her, he was fab and I know what surgery he's at so gonna get her in there, trouble is the surgery is one of those ring at 8am and first come first served

So worth it. Ours was 8.30am
If you are persistent and ring non stop for 1/4 of an hour, you can get an appointment at ours. Small price to pay imo.We did it often. Perhaps should say I had two who needed a lot of asthma treatment over the years.

Hope your DD is on the mend?

Please come join us on the link Sirzy posted, it has really got me through some tough times to speak type to others in the same position