In remission from ALL (leukaemia) for just over a year and now relapsed but it's AML, has anyone seen/had this??

[hazlinh]

DD (9) was diagnosed with ALL 3 years ago, did 2 years of chemo and was in remission and we were just starting to enjoy life as normal when her blood counts started dropping for no reason so her oncologist did a bone marrow and informed us that she has relapsed but that it is no longer ALL but it is AML now. He said he has never seen this in his 40 years of being an oncologist so I don't know what to think. A day before that he said it biphenotypic leukaemia (a combination of ALL + AML) which is very rare and possibly even worse? so I really didn't know what to think when he told us the next day it is just AML. When I asked if it was better, he said both were no good. Anyway, I tried googling but my mind is in a daze and I just couldn't sift through the literature properly. Has anyone had this? What treatment was given? I am really hoping for some good news. It seems that DD will do a few weeks of chemo and may need a transplant. Needless to say we are all shocked and devastated.

thanks labtest...

i guess she can't remember if it was daunurubicin or clofarabine....?

Regarding your question on supplements: I suggest contacting KICT (Kids Integrated Cancer Treatment) who have a specialist integrative cancer expert. She can do phone consultations with you and discuss any beneficial supplements etc which fit in with medical treatment. Her name is Jo and she is amazing.
All the best to you and your little one.

Sorry just looked at my post and typing was terrible! She said the chemo had a three letter name so not one of those two. I've heard parents talking about TVD but they weren't leukaemia parents so not sure if this would be the one she was referring to.

thanks lamazeroo..will check it out.

no problem labtest...hope all is going well for you and your dd...