Joseph's ongoing journey with Neuroblastoma

[Trazzletoes]

I've lost count of the thread number now, but my 3 year old DS, Joseph, was diagnosed with an aggressive cancer called neuroblastoma last year.

Part-way through treatment he has relapsed (currently still clarifying that, but it's almost guaranteed) and at that point long-term survival is less than 5%.

He is beautiful and wonderful.

Hope it's going ok.

Tomorrow a day of respite, dv, inshallah.

Splodging

Keeping my lights a lit for one more day.

So pleased his pain has lessened - such a brutal disease and treatment - you and your boy are amazing.

He's back on the Imodium now and nearly finished with the antibodies for this cycle... 40 minutes left and then just holding our breath until ward round tomorrow morning and then hopefully hopefully hopefully home.

Really hope everything's ok and you both get home tomorrow.

Hoping with you. And that the last 40 mins were ok.

Fingers crossed you are all home. X

Go Joe!! :) I hope he is ok today, he's doing so bloody amazingly well!

Glad you and Joe got home, Trazzles. Hope all is going well today.

Apologies, have been mega-busy again this week.

We did get home on Sunday, eventually, after I spent 4 hours stomping up and down the ward glaring at everyone while waiting for joe's meds. We ended up leaving and then collecting them later as the pharmacy appears to be grossly understaffed on weekends. Still, we got out.

Joe is still recovering from the treatment which makes me so anxious about the next lot. His gut is limping along

However, he has had a lovely birthday and popped in to nursery twice this week. He finds it a little overwhelming but I think it's good for him to spend an hour with healthy children.

He even tried 4 nibbles of birthday cake - the first he has eaten in several weeks.

Plus my card got shown on cbeebies! (I'm delighted by this) Joseph refused to look and then said he hated it.

Ah well!
Now mega-prep starts for the party at the weekend and the weather looks horrendous so I will mostly be rocking in a corner while the playroom gets trashed.

Happy 4th birthday Joe! Hope you have lots of fun at your party. Good luck with the weather Trazzle.

Welcome home and happy birthday, Joe!

Happy Birthday Joe

Good luck Trazzles. Best bit about a party is the time after they've gone when you bask in the glow of a happy child and an almost empty house

Happy birthday Joe! Hope he has a good party

Happy Birthday Joe!
So impressed at the cbeebies card :) I'm sure he was secretly feeling thrilled at seeing his face on the TV

I'm so impressed you managed to get Joe's card on CBeebies. Also very impressed at the CBeebies card. I'm afraid I was never organised enough to do this, yet you have 100x more on your plate than I ever had on mine . Typical child that he didn't appreciate it!

I hope the party goes well and that you have lots of booze in the fridge/cupboard for later! (Or maybe during...!).

Sorry, Trazzles, seem to have said the same thing twice. I am obviously very, very impressed!

Happy birthday Joe!

Wow, a card shown on Cbeebies, very special. (I did laugh though, when you said he hated it, typical! )

Happy birthday joe. I think of you often x x

happy birthday Joe :)

Happy birthday Joe, I never post but think of you and your mummy often x

Happy (late) birthday Joseph! You continue to sound utterly gorgeous, and I alongside all your many other fans think of you and your mum often.
As for the CBeebies success, just WOW - what a triumph!

Happy birthday Joe - enjoy your party!

Well done Trazzles on getting card onto CBeebies - I'm another who was never organised enough to do this!!

De-lurking to say Happy Birthday Joe

I did send a card in to CBeebies - however, I also forgot to put DD's actual birthday date on it, so they would have had no idea when to show it

Jet its cringe-worthy watching it. And quite clear they just use the first take! I didn't write his age on the back - because there's a massive number on the front so Kat's like, how old are you? 4 of course!

She also can't read my writing and gets DD's name wrong, my DM's name wrong and also says from the cats and DCat1 and DCat2, rather than from the cats, Dcat1 and Dcat2 iyswim. You wouldn't know if you didn't know the names except she just makes something up for DMum. Still, a couple of days on and J has admitted he was secretly quite pleased to have the card shown. He now wants to make one for DD

Tbh, I'm the world's least organised person but I've always wanted to have his card on TV and thinking "am I even going to have the chance to do this next year" focuses the mind somewhat.

Sorry for not mentioning when it was his real birthday but given how much of his life I share on here I don't think he's thank me in future for posting his date of birth too.

Bless his heart, he's still struggling with his tummy and it causes him a lot of pain. He's still not really walking but DH is better at getting him up so hopefully he'll come on over the weekend.

Hope his tummy settles over the weekend. Bless him, he sounds like the most lovely boy.