My beautiful Joseph with his blue eyes, ready smile and arms always open for a hug or a tickle fight

[Trazzletoes]

He has survived the most horrific cancer treatment with his smile, joy and love intact. Unfortunately the neuroblastoma has survived too.

I'm so sorry, Trazzle.

You need to make the decision that is right for your family - for you, for your DH, your DD and most importantly for Joe. Don't even think about what other people might say. The decision you come to will be the right one.

I have no idea what to say, other than you are all in my thoughts constantly.
Whatever you decide will be the right decision for your wonderful son and we will support you 100%
Xxxx

oh trazzle, I don't know what to say. Just sending you all love and I hope that you have lots of real life support to, to help you with the tough decisions ahead.

I can't donate blood at the moment, but this has inspired me to donate as soon as I am able to (despite my extreme needle phobia which has deterred me so far)

Trazzles, whatever I write is just stupid pointless nonsense, so I'll just say that I too am going to donate blood next month for the first time. Your brave, brave boy. xxx

Im so so sorry Trazzles, I dont know what to say, so Im sending much love to you all.

I am unable to give blood but my DH will

xx

Oh Trazzle, I'm sorry beyond words. Whatever decision you make will be the right one. Sending you, your family & little Joe all the love & positive thoughts in the world.

Life is so unspeakably cruel .

I gave blood on Monday, DH is due to donate next month IIRC - we've both been regular donors for years (I have my silver award).

Trazzle, cancer is such a cruel disease. There is no 'wrong' choice in this situation - only varying flavours of shitty.

Trazzle I am so sorry for everything your family is having to go through. I shall continue to pray for more time for Joe and even more importantly that the time he has is filled with fun. He is so brave and deserves the very best.

I haven't given blood in a long time. But I shall certainly find out about sessions near me now.

Trazzles, I hope that once the results are in, you will be able to choose options that you are sure of and have peace with. Whatever you choose to do (choice, such a trivial word for such a situation) will be a hard choice to make.

Well done to Joe for the crawling. Another one who hopes you can find peace with the choices you make so that you can make the best of your time together.

Thinking of Trazzles and Super Joe. You will find that you are brave and strong enough to make the right decisions for him.

I can't donate (in Australia they will not take my blood because I lived in the Uk during the 80s and the Creutzfeld Jakob era) but will encourage DH.

I'm a relative newcomer to mumsnet and new to Joes story. I'm so sorry to hear of your news and I am sending love and strength to you. I am going to arrange a blood donation appointment.

After Aillidh lost her battle with this awful disease, I signed up to give blood. I have just booked up to donate blood tomorrow.

Love and light from Bournemouth. xx

Thank you.

We are out-patients today at the hospital for various reasons and keep coming across nurses who have been looking after him commenting on how brilliant he looks and how well he is doing and then I have to tell them

Oh Trazzles - so sad for you all at this terrible time. You sound like just the best mum ever. All our love to all of you. xxx

That must be unbearable.

Trazzletoes does littleTrazzle have a thing about penguins? I noticed mention of them in some posts? I could paint one for him if you like? I'm amateur but keen Or anything else he like, just send me a picture if you want me to. PM me and I'll swap emails. xx

The little boy near to us is home for a few days which is nice for the family. He's only a few doors away from me. I pray so hard as do others. Feels aimless at times but at least it's something to focus on. He's stage 4, I don't want to google.

anything else he likes.

Thanks juniper most children are stage 4. I hope he gets through all the treatment and recovers.

Joe doesn't have a particular thing about penguins - he loves all animals - it's just over the weekend we went to our local stately home which has a bird park and the penguins are Joe's favourite there.

I spoke to Joseph's Macmillan nurse today and he can't see any reason why we shouldn't be able to get to Disneyland Paris with a wish-making charity so I'm on it now.

..... Not allowed to give blood but would love to make a donation to send your gorgeous boy to DLP - please tell me how.

Trazzle alongside the two probably more well known charities I listed earlier there is also www.thedreamteamcharity.co.uk/ who granted my children a dream come true (disability not illness here) They are really lovely and maybe a look on their site could give you ideas for what Joe might like. Who knows perhaps he'd like to be a zookeeper? Ds and dd travelled in a glass railway carriage as VIPs on a steam railway

Same as ChocolateTeapot

Oh Trazzles so very very sad to read the latest news - any words I write down seem totally inadequate. And it must be so hard for you when you end up having to comfort others too. Lots of love to you and all your family. Still praying. Any decision you make will be the right one xxx

Will go along on Friday to do this. Have not been for ages because other things got in the way but this thread is setting me straight on that.

Thinking of you and yours trazzle.

I love those penguins too, Trazzle. And said stately home is somewhere my mum used to love to take my children when we were visiting my parents. Now she is no longer with us, it's a place I always associate with her.

Thinking of you all always, and would also love to donate if you would allow us to.