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Children's health

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Original poster

My beautiful Joseph with his blue eyes, ready smile and arms always open for a hug or a tickle fight

999 replies

Trazzletoes · 14/04/2013 08:13

He has survived the most horrific cancer treatment with his smile, joy and love intact. Unfortunately the neuroblastoma has survived too.

OP posts:

Are your children’s vaccines up to date?

Set a reminder

ALMOSTMRSG · 14/04/2013 22:47

I'm so very very sorry Trazzles. You and your family will be in my thoughts. X

lougle · 14/04/2013 22:49

Trazzle, thanks for the update. I used to work in neurosurgery, so have a little experience of the situation you are in, although not from the same angle.

You aren't giving up on Joe. You aren't being defeatist. You are taking each day as it comes, making the best decision possible on that day.

It's all you can do.

Hassled · 14/04/2013 22:49

Thank you so much for taking the time to update us all - they must have been very hard words to write. And as always, your love for Joe shines through.

Alibabaandthe40nappies · 14/04/2013 22:52

Trazzles no-one is going to think you are giving up on your son. You have been dealt the shittest of hands.

Much love and strength to you all xx

NorthernLurker · 14/04/2013 22:56

Have read your updates. Ok Trazzles, you know,I hope, that our hearts are with you and Joe. Our prayers and thoughts and anything practical that can be done (I am also near Leeds). I think you are very wise and your loving care of Joe is inspirational. You've always made the right calls. I know you'll keep on making good choices for Joe.

seeker · 14/04/2013 22:56

Please don't feel that you have to reply to anyone- pm or not. I hope I can speak for everyone when I say that we want you to know that we are as with you as we can be- but we don't want to add even slightly to your burden. So any messages we send you we expect to be one way only. Don't spend even a heartbeat thinking about replying, unless it will make you feel better. We will continue to send you our messages of support- take what you can from them- but don't feel a obliged to do anything about them. You are in our thoughts- that is all you need to know.

bobkate · 14/04/2013 22:57

oh jeez Trazzles , I read this last night and was utterly lost for words...so very gutted for you all that, after all his little body has been through, the bastard cancer seems to have survived. Devastating news for you all and I can only echo everyone else by saying that you are in my thoughts, all of you, and I shall continue to splodge and pray ( in my non godly fashion ) and willing with all my willingness that there is to be some news tomorrow that can offer you some hope. Huge hugs and much love xxx

thewhistler · 14/04/2013 22:58

Of course you are not being defeatist, you are being practical and measured while your heart is breaking.

Thank you for telling us.

We will all pray or do the equivalent for Joe and you.

BriansBrain · 14/04/2013 22:59

Adding to the support and offer for help and need x

narmada · 14/04/2013 23:02

I had the same thought as seeker and I hope you only continue posting here cos it helps you in some way, and not out of some imagined duty to update us all.

onedev · 14/04/2013 23:04

I don't know what to say - so sorry & praying for a miracle tomorrow.

NorthernLurker · 14/04/2013 23:07

Had a thought - a friend of mine (a nurse) volunteers with a charity which takes sick children to Lourdes. If you do want to take Joe to France I'll see if I can get a contact name with the charity as they must surely know how to manage some of the issues which may come up.

lisad123everybodydancenow · 14/04/2013 23:10

This reply has been deleted

Message withdrawn at poster's request.

LegoAcupuncture · 14/04/2013 23:12

Will keep you all in my thoughts tomorrow.

Glad he enjoyed the penguins.

moreyear · 14/04/2013 23:13

I am so sorry. You are all in my thoughts and prayers.

ChippingInLovesSpring · 14/04/2013 23:33

Trazzle - I just wanted to send you more love & more strength to keep putting one foot in front of the other - especially tomorrow. It's one thing to 'know' - it's another to be 'told'... I'll be thinking of you.

You and DH will make the best decision for Joe (if there is a decision to be made) - we all know that x

But, to reiterate what others have said - IF there is any chance that going to the States will help and it's not funded then we will all do everything we can to make sure Joe gets the money he needs.

Bastard Neuroblastoma

Much love
xxx

ReindeerBollocks · 14/04/2013 23:35

I am praying for you all, but mostly for Joe.

You are doing the best for your boy, that is the right thing x

Asheth · 14/04/2013 23:49

No one would ever think you are giving up on your son. The love you have for him shines through in every post you write. And everyone here knows that you will make the best decisions possible in this nightmare situation.

While I live too far away to be of any practical help I will be here for virtual handholding and hugs. And if there was a fund to help Joe get to Disney Land or anything else he wants/needs then I would definitly contribute.

I shall be thinking of you tomorrow. And continuing to send Joe lots of love and prayers. xxx

CakeExpectations · 14/04/2013 23:56

Thinking of you. If only wishes really did come true. Sending you strength for tomorrow, and all the other tomorrows.

With love. xxxx

Praying4Beatrice · 15/04/2013 00:03

This reply has been deleted

Withdrawn at the user's request

TabithaMcKitten · 15/04/2013 00:26

I am so sad for you all that this has happened - it is incredibly unfair.

When my son was diagnosed with leukaemia, I had a little epiphany about how there are no guarantees in life and that my role was simply to ensure my children's lives were happy and full of love, and that, as a mum, your job is to do the absolute best for your child at all times. I very much admire that you are continuing to be able to consider what is right for Joseph, despite the fact that it is hurting you. You are continuing to put him first at all times and that just shows how much you love him and what a fantastic mummy you are for him xxxx

GColdtimer · 15/04/2013 00:49

Trazzle, another one who has not posted before, I am so so sorry. I have been thinking of your family all day. Wishing you all the strength in the world.

kitsilano · 15/04/2013 02:41

I have been lurking and am so sorry to hear your news. My very close friends have just been through this and lost their son to neuroblastoma in February. My heart goes out to you. I know you will do the very best you can for your son and that is all you can do. Accept help, look after yourself as well, treasure every moment and say YES to every opportunity and offer you get.

Here is my friends' blog about their experience. No need to even look if you dont want to but just in case it might help in some way

alexsharpsblog.wordpress.com/

MyShoofly · 15/04/2013 02:59

I am so sorry...have been thinking about Joe all weekend. So bloody unfair.

judge you? god your going through everyone parents nightmare...nobody can judge you.

peace, hope and blessings to you and your family Trazzle

sassytheFIRST · 15/04/2013 03:27

So very sorry xx

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