Are your children’s vaccines up to date?

Set a reminder

Please or to access all these features

Children's health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Hearing tests - frequency of?!?

8 replies

Chigertick · 25/03/2013 23:15

DS just 2 has a history of glue ear/ ear infections since 6 months old and was referred to ENT at 1 year. Had a hearing test at 15 months which showed type b and type c in either ear.
Our ENT dept doesn't routinely copy info to patients/parents but I have seen the letter suggesting a follow up in 3 months - and have discussed this twice more. I have also written to the knobhead consultant we saw asking for the follow up test.
What more can I do? They don't seem to take it seriously Hmm And I am worried about future speech development if any issues are left undetected.
Thanks in advance for any words of wisdom.

OP posts:
Are your children’s vaccines up to date?
Lonecatwithkitten · 26/03/2013 09:00

How is your DS's speech currently? Did the audiologists assess speech at the hearing test? Some children do develop normal speech inspite of severe hearing loss - my DD did.

Chigertick · 26/03/2013 09:14

Thanks for your reply!
Yes his speech seems fine at the moment - but I know I was like your DD and despite hearing loss had a good level of speech. This meant it was undetected for a while and caused problems with schooling - the usual re loud noise in the classroom, being v v tired all the time, terrible behaviour (at home unfortunately for my parents!).
I just really don't want this for my DS Hmm
I may be worryingly unnecessarily but as he was prem, is a twin (who statistically have "worse" speech) and is a boy I can't help but be concerned. Our lovely GP shared these concerns but the consultant has been really awful and I just feel I'm not getting anywhere!
I wondered if anyone knew of any guidelines that should be followed re hearing? Should they be retested within a certain timescale? Or is it enough that the consultant himself wrote in a letter that they should be retested in 3 months (7 months ago now and no test) and I can use this with PALS?

OP posts:
Mumtoprem · 26/03/2013 09:19

DD age 4 was recently diagnosed with hearing loss and given hearing aids. We have been told under 5 hearing should be retested every 6 months. Over 5 years every year.

Can't you ask GP to refer you to a different hospital?

DeWe · 26/03/2013 10:43

Ds, whose been under ENT since about 18 months for glue ear, has hearing tests roughly every 3-6 months depending on how his hearing is/what stage the grommets are. However my GP has just, for the second time, written to the consultant requesting that he sees ds out of appointment order due to concern. We then get an appointment very quickly.

Ask your GP to write if they're open to that.

incywincyspideragain · 26/03/2013 22:40

These are the NICE guidelines for sugical management of glue ear which states there should be 'active observation' over 3 months after glue ear is identified (page 6).

You have a right to your hospital notes - I would request them - I did, had to pay £20 admin fee but worth it to know exactly what the audiology report and recommendations were.

incywincyspideragain · 26/03/2013 22:42

Full Guidelines for reference too

incywincyspideragain · 26/03/2013 22:44

NDCS Glue Ear lots of good info on here and they offer good advice - might be worth a chat if you are concerned

Chigertick · 26/03/2013 22:54

Thanks everyone for your advice. I will request the notes -again- now been 3 times in writing and twice verbally (!)
I heard today that DS has been transferred to another consultant so maybe we will actually get something sorted out now. The previous one was so rude and arrogant - but that's a whole other rant Smile

OP posts:
New posts on this thread. Refresh page