Do you have a child with crohns? It's pretty lonely.

[Mrpip]

My son ( age 14) has crohns. I don't know any other parents who have a child with this condition. It's tough.... He's so often unwell.
He's been so ill this last year. As a mum It's hard. I'm a very optimistic person but crohns is like running up hill in wet pjamas weighed down with lead!
Be good to hear how other parents are managing this.

Hi Mrpip I don't know any children with crohns but do know a dad who is often unwell with it. I am sorry to hear you and your son are going through this.

I would recommend you find a support group where you can speak to other parents, a quick google has thrown up Crohn's and Colitis UK here, you may be able to find others as well.

Hope this helps, someone more useful will hopefully be along in a while

Have you been in touch with www.cicra.org/ at all? - it is a childhood Crohns charity that a friend used a lot for advice when her daughter was school age.

Thankyou for your replys I will contact the organisations you recommended.

My 16 yo nephew was diagnosed with crohns at the end of last year and I'm sure his family have found the charities referred to above useful. Also I think the hospital where he is treated has quarterly get togethers for the children and their parents so that they don't have to feel quite so alone. Does your hospital do anything similar?

Hi Mrpip sorry to hear about your son having Crohn's disease , it's so rubbish isn't it? My dd has the same and I really feel for you, it's especially difficult at this age as they are coping with something life changing that they can't really handle or come to terms with.
It's been quite a journey with dd since her diagnosis ... getting to grips with the pattern of the illness , the medication and how it has affected her life and general health and dealing with the emotional side of having a lifelong serious illness.
I hope your son is going through a good phase atm and wishing you both strength .