Seizures

[JetcatisBack]

Can anyone help calm me down and/or help me figure out what to say to GP please?

DD (15) was found barely conscious by the side of the road yesterday, after apparantly collapsing and fitting on her way home from school. A very kind passer by stopped and helped her, while ringing me from DDs phone (thank you whoever you are - I didnt even think to get her name .

DD has only ever had one full seizure like this, which was 6 years ago. As the docs said it was more than likely a one off, no further tests would be needed. She had a partial fit after a fall towards the end of last year, but we put that down to the shock of falling - no other big fits. A&E doc said that as there was such a long gap between the two fits they would be treated as separate incidents, and to follow up with GP with referral to neurologist. I asked if he was thinking epilepsy, he said yes.

I'm a bit lost as to what I should be asking/discussing with GP. DD goes trampolining, which is a good stress relief for her (ASD) but with a fractured cheekbone along with various cuts and bruises all over her face, hands and legs from when she was fitting, I think that is probably not a good idea at the moment

Does anyone have any similar experiences they would be willing to share please, and help me prepare DD for the next steps?

My son was slightly different as he had a febrile convulsion at 13 and we went through all the tests etc for epilepsy. He had an ordinary EEG (wires on the head which track brain waves) which show some irregularities so he then had a sleep deprived EEG, which involved keeping him up all night until we got to unit in the morning where they set him up for an EEG and let him go to sleep. DS was diagnosed with GEFS+ which is basically an abnormal history of febrile convulsions which a genetic factor so not really relevant to you but all the procedures for diagnosing are the same.
Its awful the damage they can do to themselves isnt it. DS managed to cut the back of his head and give himself a bloody nose at the same time. A previous FS when he was 8 he hit his head on the toilet and ended up with a black eye.

Thanks Bruffin, yes -they said she would be having EEG, although I didnt realise it may be a sleep deprived one - she can sleep for England!

DD also had febrile convulsions as a baby, but then nothing till she was 9. Hope your DS is ok, sounds like he has had some bad ones I'm just scared to let DD out of my sight now, which is ridiculous as she may not have another one for another 6 years

DS is fine now, he is 17 and hopefully has grown out of them. The sleep deprived one was because of an slight abnormal reading for the normal eeg., but the sleep deprived one came back clear.
I know how you feel, but ds is such an active boy that i couldnt stop him doing anything.

Hopefully your dd will be okay. My friends dd had some strange fits when she was about 15, and then nothing after, from what i can gather its not uncommon in teenage girls.

My ds is 2 and has complex febrile convulsions. Children who have complex febrile convulsions have a slightly increased chance of developing epilepsy in later life. I have a friend who has epilepsy in childhood but she didn't have many fits (controlled by medication i think). However puberty seemed to trigger more fits and she had quite a few until they got her medication altered again. I think puberty can sometimes trigger epilepsy if someone is susceptible? That said she had gone on to have 2 kids and is happily married. For both her and my other epileptic friend, they find tiredness is a factor and try to avoid getting overtired (or drunk now they are adults).

Not saying your daughter has epilepsy tho! Hope she us feeling ok