Please or to access all these features

Add post

Watch this thread

Save thread

Start a new thread

Flip thread

Hide thread

My feed

Active Unanswered threads

Getting started FAQ's

Unanswered threads Acronyms Talk guidelines

Hide shortcut buttons

Talk

Children's health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Flip

Original poster

Severe to moderate hearing loss in 4yo

8 replies

ILikeSquirrels · 02/02/2013 17:15

My DB's DD(4) was just diagnosed with severe to moderate hearing loss with nerve damage in one ear. The other ear is, for now, ok. It was Ickes up by school nurse. She passed the newborn hearing test. Specialist is suggesting it will only get worse and heating aid is the best option. Do any of you gave any experience of this? DB is kicking himself for not spotting any symptoms.. But now it seems we do have to repeat questions to his DD a lot... Her speech is fine, loud but fine...

OP posts:

Are your children’s vaccines up to date?

Set a reminder

Original poster

ILikeSquirrels · 04/02/2013 02:41

Bump, please!

OP posts:

HugAndRoll · 04/02/2013 03:14

No experience other than being a step behind you with ds1, also 4. It was picked up by the school nurse he didn't pass the hearing test and we have an audiologist appointment at the end of the month.

He too passed the newborn screening however his speech and language is not fine and we are waiting for our first speech and language therapy appointment.

DeWe · 04/02/2013 09:56

Tell him not to blame himself. Ds has glue ear, and when bad lip reads, but I didn't realise until ENT pointed out his cute little habit of patting my cheek when he was talking to me was not an attention getter, but him turning my face so he could lip read. Ent said that children compensate very well and cover up even substantial hearing loss.

TheNinjaGooseIsOnAMission · 04/02/2013 10:11

my dd3 has a moderate/severe hearing loss one side and a profound loss on the other, her hearing loss wasn't picked up until she was a year old as she didn't have the newborn screening, it really is easy to miss. She's a hearing aid wearer and gets on really well with them. I'm a big lover of the ndcs very supportive lot and plenty of parent friendly information.

There's plenty you can do to work round this, getting her attention before you speak to her, make sure you're face to face and asking her to repeat back instructions will help with making sure she's got everything that has been said. There's info on the ndcs for schools that may be useful, you should also ask if she's been referred to a teacher of the deaf (criteria varies in areas) who should be a mine of information to your db and dn.

These days hearing aids come in a range of colours as do moulds so your db should ask if these are not automatically offered, it all helps with making your dn confident and happy wearing them

Original poster

ILikeSquirrels · 05/02/2013 20:22

Thank you.. That's all so helpful and reassuring and positive. I'll pass it all onto my DB

OP posts:

Boboma · 05/02/2013 21:04

My DD is profoundly deaf in one ear and a hearing aid has really helped her. It has given her some directional hearing which has made her more confident in the playground. Like others have said, make sure your db doesn't feel bad. When one ear works well it is very difficult to spot. I also recommend the NCDS. Have a look at their leaflet about 'unilateral hearing loss' (you can request that they post it to you). The 'understanding hearing tests' one is good too. Also you might want to think about getting her sorted in school so that she is always sat at the front with her good ear where it will pick up what the teacher is saying eg not good ear to the wall. If she gets a hearing aid then someone will go into her school to run all this past her teacher, but it does no harm to have a chat about it now.

chocolatecakeystuff · 05/02/2013 23:17

My dd has moderate to severe hearing loss in both ears.

Wasn't picked up untill she was 5 so don't kick yourself .

The plus side of the late diagnosis is she learnt to lip read very well so although she has hearing aids she doesn't rely on them completly

I second the ndcs, they're fantistic.

Make sure the school get in touch with the teacher of the deaf, and back up with speech & language team.

Dd has fm radio aids in school which help cut out background noise. They've helped her a treat, but funding for them was difficult to obtain they're worth there weight in gold.

Its not as much as an impairment as people think and half the time you wouldn't know dd was deaf x

jlp12345 · 12/09/2013 10:08

DD diagnosed with severe hearing loss in one ear - lip reads perfectly and also started wearing a hearing aid. We picked it up while using headphones. Can't believe we did not realise until then. Its all come as something of a shock but she manages really well and its amazing how her body has adjusted. One of the teachers at her school also is completely deaf in one ear - I never realised. Would love to hear how your children are coping - I worry so much!

Flip