Distended stomach, screaming in pain...

[MoelFammau]

Hi all.

At the end of my tether.

DD is 18mo and since birth has suffered with what the doctors have labelled trapped wind, then silent reflux. She has been prescribed Gaviscon which made no difference. Nor did Infacol or Colief.

I'm wondering if it's something else. Her stomach is permanently distended and hard to the touch. She's never slept through the night, waking in pain every few hours. Some nights (such as this one) she screams for hours, writhing in agony. Painkillers don't help, nor does warm water. Rocking in an upright position sometimes does but the screaming starts again once she lies down. It's nothing to do with protesting about her cot - she screams lying cuddled in my arms too. It's the position that causes the pain.

The doctor and HV have always said oh she'll outgrow it once she's on solids, or once she starts walking... These things have come and gone with no change. She's as desperate for sleep as we are. I'm wondering if her tubes are kinked in some way, trapping acid... no idea if that's even possible really.

Any ideas of what it can be and how I can get the doctor to take things seriously? Feeling so so sorry for her.

DD1 had repeated ear infections, to the point her eardrum would burst. The best relief was from oestopathy. That's interesting about the tt causing it. She was a forceps delivery and her head and neck was a complete mess after delivery.

DD1s tongue is restricted quite far back, it's too short. She still goes to my oestopath to help 'release' it and she's 14 now!

Went to the doctor. She pooh-poohed tongue-tie and said 'it really doesn't have any impact anyway'. But I got a referral to Yorkhill hospital so hoping things improve. I'm a zombie - 3rd night on the trot with a screaming child who sleeps for 10mins then screams for an hour... all night. Can't take much more!

Get the number of the dept for the hospital and speak to the secretary and say you'll take a cancellation. Most of the secretaries will be helpful.

Sounds about right, a doctor poo pooing tongue tie. That's exactly what happened to us.

Expect it from most medics tbh, and find yourself people who understand about tt until you know for sure whether there is tongue tie or not.

The tongue tie examination was a wooden stick forced between a reluctant DD's teeth. DD refused to open her mouth wide so doctor prodded the end of her tongue and said 'oh it's fine'. Then said it didn't matter anyway.

This was the same doctor who said I should wean at 4 months and stop breastfeeding at 10 months.

Where are you based Moel?

Doc sounds a bit useless

Good news that you got the hospital referral . It might be helpful before you go to start a diary, charting what DD is eating/drinking and the times and length of her screaming as well as any other physical symptoms and bowel movements . As someone mentioned up the thread I would film her as well.

Glasgow.

Filmed her last night. It was pretty spectacular.

Yorkhill is great, my DD was there briefly and they helped diagnose something that had been stumping specialists in another hospital for months. That's good news you have a referral. Here's hoping your DD will be on the road to recovery very soon.

Sorry, yes, Yorkhill. Glasgow of course!

We had this. Gaviscon, infacol and colief won't touch the sides if it is true silent reflux. You need a paedietician, don't get fobbed off by a dietician, in my two years of trying to sort DD they've yet to be of help.

Food intolerances take 10-14 days to get out of the system and even longer for the irritation to go away. I stopped bf'ing DD (I was on a very restricted dairy and soya free diet) at 25 months, at 27months she finally stopped waking crying and writhing in pain after being in her cot a few hours asleep. We know she has a food intolerance during to periodic trials but she also has silent reflux which we had hoped would be easing by now

There is also somewhere on MN a superb thread on toddler tummy troubles