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toddler with a colostomy - any tips on choosing a larger bag?

6 replies

bobdiddly · 23/08/2012 21:00

My 3yo ds has had a colostomy for a year. Currently using Hollister Pouchkins drainable. The best I've found so far, although recently they've started coming unstuck so am sticking them on with extra tape.

Am trying to find a slightly larger bag as the pouchkin gets quite full these days, it's got no filter so windypops are a problem and its see-through - what's that all about?!

I think he should be able to have a bag where his poo isn't on show if his top rides up.

Have just today tried a dansac novalife bag. Just a bit bigger, a filter and opaque. Ideal! But......as I am still sticking the bag on so the opening is at the side, it hangs down below his top now.

Should I stick it on like adults do i.e opening pointing

OP posts:
Are your children’s vaccines up to date?
MoaningMingeWhingesAgain · 23/08/2012 21:02

I am only familiar with adult stomas and my knowledge is a bit out of date - have you got a stoma nurse that can help you find the best option for him?

bobdiddly · 23/08/2012 21:04

Stupid phone........opening pointing downwards? I'd need to tuck it into his waistband, so surely that'd block it from filling up?

This is doing my head in as I feel the provision for kiddies is really limited. I have tried bag covers, but they seem to weigh the bag down and don't stay on.

Any handy hints would be appreciated :)

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bobdiddly · 23/08/2012 21:07

Thanks......paediatric stoma nurses are like gold dust and the one we saw at gosh was pants. There's no substitute for practical mum advice sometimes I think. Our assigned stoma nurse deals with adults in the main

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MoaningMingeWhingesAgain · 23/08/2012 23:30

I agree that tucking it into his waistband is asking for a disaster. How low on his abdo is it sited? Getting it somewhere that won't show if his top rides up, and doesn't get tucked in his waistband - are higher waisted trousers a la Simon Cowell an option?

Or layering a tucked in tshirt underneath a looser shirt to cover him a bit. Or get much longer tops and have them taken in a bit? Just trying a bit of lateral thinking...

bobdiddly · 24/08/2012 06:55

He has a vesicostomy for his urine too which goes straight into his nappy, so can't pull his trousers high up as it rubs his vesicostomy if he runs about too much - which is all the time, being 3!

Anyway, yes we do try to get longer tops which used to cover his smaller bag.

I guess I thought I had found the answer with this new bag, but it throws up different probs. I know nothing will be perfect, so maybe I am expecting too much..........

OP posts:
Lougle · 24/08/2012 19:06

This is American, but www.cmostomysupply.com/cm_html/p_psupport.html a horizontal pouch.

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