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I'm worrying whilst waiting on 4 yo's blood test results.......

25 replies

curiousparent · 23/05/2012 15:29

4 yo DS has had so many illnesses for past few months, he is really pale and has been on iron for a month but GP has done bloods today as the iron hasn't done anything for the paleness.

He also complains of his legs feeling wobbly and stomach ache. He has had a few red bruises but not a lot but I cannot help but be concerned this is something not good. Other symptoms are coughing until sick (but chest is clear) and random high temps with no other symptoms.

I could be a little over sensitive because I have already lost a child to cancer but would appreciate anyone elses thoughts.

I know that if it it is something not good we will hear something pretty quickly but currently every minute feels like about an hour!

The GP said he would contact us in a couple of days with the results and so I guess it is just a waiting game really.

Can't help but feel really nervous even though I am sure that statistically such occurences are very rare......

OP posts:
Are your children’s vaccines up to date?
newmum001 · 23/05/2012 15:40

Oh how awful for you! I really hope everything works out and it's something that can be sorted very quickly. Fingers crossed for you!

curiousparent · 23/05/2012 20:18

Thanks. Although I feel confident if it was anything to really worry about I would have heard by now I can't help wanting to just hear the results and have it confirmed that 'he is just one of those kids' who gets loads of things.

I do think that when he gets unwell he doesn't eat, which leaves he more prone to picking up more bugs....

Have been trying the multivitamins which in the past when he has had a run of illnesses has been quite succesful but this time round doesn't seem to be helping much....

Roll on Friday!

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eastendywendy · 23/05/2012 21:57

I hope you get good news soon.

My ds (now 5) went through a stage of high temperatures on and off and just general unwellness, big black cicrcles etc. It wasn't anything sinister it was just him being run down I think.

eastendywendy · 23/05/2012 21:59

Ps if he's regularly coughing until sick I'd ask for a chest x ray even if chest sounds clear. Especially given the fevers. Ds had pneumonia and it was a chest x ray that picked it up.

BigHairyFlowers · 23/05/2012 22:02

Thinking of you, OP. It's awful to just be waiting and worrying. Hoping for good news soon too.

Heyyyho · 23/05/2012 22:11

Thinking of you. I have been in a v similar situation and it is so worrying. Big hugs

drcrab · 23/05/2012 22:31

We've just gone through that. We are on our 3set of blood tests. Rash all over, fever that wouldn't budge. Achy joints. They think it might be HSP.... Good luck with it all. It's horrid. My son is also 4.

curiousparent · 24/05/2012 06:39

wendy really interesting you saying that as I was going to ask for a chest x ray next and now I definitely will. My eldest DS (who we lost to cancer) also had pneumonia when he was 3 yo (this is totally unrelated to his cancer diagnoses at age 7). His pneumonia was picked up because after being in hopsital for a few days with incredibly high temp he told them his back hurt and he had his O2 sats taken that were then showing low levels hence chest x ray. However his situation was more acute and it rapidly presented/got diagnosed. With my 4yo it seems to be a long drawn out process and in my mind I am sure that it is his constant battle with lots of viruses (plus he also had flu back in Feb which was confirmed by swabbing) which is making him so poorly but I really do need that confirmation now.......

drcrab sorry i'm being a little thick at the mo- what is HSP?

Many thanks to all who have taken the trouble to post and pass their good wishes and good luck to all others currently having a horrible time.

OP posts:
Julie999 · 24/05/2012 07:01

Hi, I am hoping for the best of news, hopefully nothing more than being run down. It must be a worrying time... I see no harm in calling the doctors to hurry the process along. I would think doctors would understand. Please let us know how you get on.... Looking forward to reading food news. Big hugs...

Julie999 · 24/05/2012 07:02

Sorry... Good news... Maybe time for some food now!
Xx

foxinsocks · 24/05/2012 07:15

Fingers crossed for good news.

Both dd and ds used to cough till they were sick. It was a combination of reflux and a persistent cough. Steroid preventer inhalers and anti reflux meds sorted it out.

If he is coughing like that a lot, it is bloody exhausting for them. It used to disturb the dcs sleep a lot and I honestly think this made them more prone to everything else at that age.

Good luck for the results and I hope they come through sooner rather than later so you don't have to keep waiting!

Julie999 · 24/05/2012 07:23

Forgot to mention when ds was much younger ... 6 years ago.. She had pneumonia , only picked up on chest x ray, and was admitted to hospital for intravenous antibiotics when they found it, the week prior Gp sent us home, saying it was a virus, and would work its course. She also had rota virus before that, and we were kept in an isolation room and given iv fluids....

Would definately second going to get a chest x ray... Chest sounds not always accurate..

tootymaloo · 24/05/2012 07:25

Fingers crossed for you Curious that you get some answers very soon.

We have just been through something very similar with DS and spent 7 months trying to get answers.

Got there in the end and thankfully its just GF we are dealing with but the not knowing was so scary.

Goodluck X

kickingKcurlyC · 24/05/2012 07:31

Good luck. We're in the same position here. It's a scary time.

Makingmama · 24/05/2012 09:02

Hope you're hanging in there and not going too stir crazy? I'm also waiting on results for ds...another week to go...it really is hard. Sorry for the loss of your ds Sad As hard as it is try and keep yourself very busy. I would porbably give the dr a ring today and tomorrow to see of they have any reults back yet? I cannot imagine they would mind. Have everything crossed for good news Smile

drcrab · 24/05/2012 09:39

Hi curious
HSP is some virus that causes a big rash. If you google HSP it will be the second or third one on the list. Sorry am on phone now so can't link. But he had 3 weeks of rash and fever. And the gp kept saying oh just a post viral. Now we have a consultant on our case and we need to do weekly wee tests and go back in a month. I'm not sure it's JUST a post viral. Annoying and v worrying. I hope you get great results soon.

saffronwblue · 24/05/2012 09:42

Thinking of you curious. Hope the hours pass quickly and you get good news from a phone call.

curiousparent · 24/05/2012 09:51

Hi drcrab yes have googled now, thanks for info (am always intrigued what somethign is when I hear of it) Confused.

Hope all comes well good for your DS quickly now.

Continuing to be very grateful to all for your good wishes......

I feel so much better/calmer than when I started this thread - I hope that is my sixth sense telling me all will be well :)

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curiousparent · 24/05/2012 09:53

........and of course continuing to hope for the best for all of you up thread also going through similar.......

x

OP posts:
sybilfaulty · 24/05/2012 09:54

I am so sorry for your loss. I cannot imagine how stressful it must be waiting when you are in that position. Fingers crossed all is well and that you get reassuring news.

curiousparent · 25/05/2012 10:15

Ok phoned the surgery as couldn't wait any longer and was told by the receptionist that the results are normal but that she doesn't know if all results are back yet or not. I will await phone call from GP to discuss tactics now.

Good luck to everyone else currently going through difficult times with childrens health.......

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skrullandcrossbones · 25/05/2012 10:24

So glad tests were normal OP.

Just wondered if the blood tests included coeliac? Your DS's symptoms sound EXACTLY like my 4yo DS's (apart from the bruises, which mine didn't have). Mine was diagnosed coeliac 3 months ago.

Since going gluten-free, he has transformed. Bouncing with energy, fighting off all the infections he was succumbing to before (because his damaged intestine wasn't absorbing nutrients). Putting on weight and growing. He will probably be able to come off the iron supplement in another few months.

If your DS hasn't been tested for coeliac, might be worth asking for this? Many people and doctors think that if there's no diarrhoea/obvious stomach problems then it can't be coeliac, but that is completely outdated - my DS, like many others, didn't have this (though did have tummy aches, which I see yours does too).

curiousparent · 25/05/2012 11:40

Thanks for that skrull I will certainly look into that.

Sorry to hear that your DS has been unwell but glad that the gluten-free is enabling him to thrive :)

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skrullandcrossbones · 25/05/2012 16:28

Yes, it's just wonderful, the change. Well worth the initial trouble getting used to it. In 3 weeks we're taking DS2 for his biopsy to confirm whether he also has it - also showing various symptoms, though his blood test was negative.

I really hope you get to the bottom of your DS's problem - if it did turn out to be coeliac, there are some really helpful MNers on the Allergy board.

tootymaloo · 25/05/2012 17:11

Thats good news about the bloods. Have you pushed for an xray yet?

You will see from my previous posts that we were told by 5 different G.Ps that Ds had a clear chest, when we saw the 6th G.P we refused to accept he was clear she agreed to send us for xrays and both of his lungs had areas of collapse and he had a serious infection. He had been coughing for months to the point of being sick everyday. I've cut a long story short.

I cant see it being a common issue of crap G.Ps but you never know!

Also get a copy of the blood results so that you can check what tests were done. We thought everything had been ruled out until we saw the specialist at the hosp and she said only the basics had been doneConfused

This makes me sound very anti Drs but i'm not really, its just sometimes i think they refuse to believe how much intuition us parents have and its easier to fob you offHmm

So sorry to hear about your other DC.

Ds had the LDH blood test at the hosp to look for indicators of lymphoma and leuk just incase you get your results and that test isnt on thereWink

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