Hi, looking for useful advice, hoping someone can help.
My (almost) 10 yr old ds has never been dry at night, until 18 months ago she was incontinent of urine during the daytime too but we've carefully managed that too and she has only very occasional accidents during the day now. We have been with our local continence service for several years and they have been very good, providing us with pull ups and washable daytime pants. I'm not particuarly anxious about it all as i believe what will be will be but as you can imagine my ds is very upset and becoming more so. Tonight she has been particuarly upset, and her pull ups no longer fit properly after a growth spurt so now we're on the hunt for something slightly bigger too so she can be comfortable. She has never woken in the night, and sleeps extremely heavily. As you can imagine, we've followed all the advice given, and she used oxybutinin with no effect.
I'm going back to the continence service to speak to them about an alarm and possibly desmopressin medication. Now the daytime incontinence is ok, i feel it's the right time to look at these options. Can anyone give me any feedback on their experience with these options? I'd be grateful to hear about others experiences. It's a distressing subject for her, and I've taught her to manage this as I don't believe it helps to get upset over it if possible, it's a common thing i know and i hope she will grow out of it. Incidentally she was born at 28 weeks, and although she has had other developmental delays (motor mainly) she's now a very average child in other ways. She has an anxiety disorder which obviously doesn't help and is the main reason I play things down with her concerning this subject. Any advice gratefully recieved! Thanks