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Badly burned daughter - an update

41 replies

BulletProofMum · 08/04/2012 22:53

A few months ago I shared my story about my daughters horrendous accident. She got caught in a petrol explosion and received 50 % burns. She spent 2 months in intensive care. I thought I'd share an update.

It's been 8 hard months but she's doing brilliantly. Her scars are maturing well. She needs loads of care
: moisturising and massage, silicon dressings and pressure garments. She wears these head to toe including a balaclava. Being out and about is hard due to then stares butmi'm getting used to these now. She's been extremely itchy and sleeps very badly because of this. However even this is improving and for the last 2 nights she slept through. A first since her accident. She had some steroid injections which seem to have helped.

She had developed clots whilst in itu and I was having to inject her twice a day with cleaner ( a type of warfarin). The clots are stable so it was a huge relief to stop having to do this before Christmas.

She's going in for more surgery in June to regraft her right hand and straighten her fingers. They'll also laser her large hypertrophic scar and treat with recell (spray on skin).

Life has been tough butnshe's a happy little girl most the time. It's been tough for me but maybe sharing her wonderful progress with a bunch of strangers with be helpful!

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CailinDana · 08/04/2012 23:13

I read your original thread and like Eggsits I thought of you when I read about the woman burned by a petrol fire in her kitchen. I am so so glad to hear your daughter is doing well. Thank you so much for updating, it really is a boost to hear that you're getting through and that things are on the up for you. I hope things continue to improve Thanks

LoopyLoeufdePaques · 08/04/2012 23:24

I've just read your original thread. DH and I are both crying. I'm so so sorry this has happened, and really glad things are improving. your poor, poor little girl. :(

lisad123 · 08/04/2012 23:45

Didn't read OT, can anyone send link?
I'm so sorry you are going though this, but glad she has made improvements. Sadly people always stare, I'm sure they aren't trying to be rude, maybe wondering what happened ect.
Stay strong x

BulletProofMum · 09/04/2012 11:43

I've learned with the stares to initially avoid eye contact, then if people are really staring stare back. I'm surprised how many people seem to think she's wearing the balaclava for fun. Would be a strange thing to put on a 2 yo! we went for bright colours as you can't hide it. Was brave yesterday and took her swimming. She loved it. I dread the day when she becomes self-aware and hope she learns to deal with it.

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NeverEverSometimes · 09/04/2012 12:00

I remember yours and your daughter's story. Such a tough time for you all and it's heartening to hear that things are slowly improving. How are you doing? I've had a child who was in ICU for 3 weeks and was amazed at the adrenalin that kept me going, i can't imagine months lving with the stress. Do you have a good support network. How are the rest of your unit, you're doing wonderfully to keep it all tgether?

And fuck the stares, they are nothing in the scheme of things.

ellenjames · 09/04/2012 12:02

So glad everything is going well for you all as a family xx

BulletProofMum · 09/04/2012 12:06

Itu is a horrible roller coaster. Every bit of positive news then countered by a slide downwards again. I clung to every bit of hope. Some of the nurses seemed to prefer the 'lay it on thick' style. I guess preparing for the worse. I look back on that black time and also wonder how I ever got through it. The bleeping of machines, alarms, constants tests. Also you are living other peoples tragedies. In the time she was there 4 people died - you get to know the families.

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Nyac · 09/04/2012 12:09

Thanks for letting us know about how your dd is doing BPM.

startthefansplease · 09/04/2012 12:11

This reply has been withdrawn

This has been withdrawn as this poster has privacy concerns.

NeverEverSometimes · 09/04/2012 12:24

The bleeping and the frantic scanning of every machine trying to second guess everything keeps you on high alert for sure. You cope because there is absolutely no choice and it does harden you or focus you, not sure which.

It can be harder for those on the periphery as they feel both of your pain and can't help. I found it easier as being the mother as i could actually do something and be active in the decision processes. Also, i wouldn't have wanted anyone else to be there to support other than me: My child, my job.

Wishing you every strength there is, you sound like you are being truly superb. Your daughter is so young and you can help shape her attitude for her coming life. The active decisions to forgive and be happy are inspirational.

puds11 · 09/04/2012 12:37

i remember your original post bullet. Thankyou very much for the update, i was thinking of you and your little girl the other day, wondering how you where getting on.
She is such a brave little soul, and you should be very proud of her and yourself for the way you have coped since the accident
I hope things continue to imporve for you and your family.
Please update from time to time

shockers · 09/04/2012 12:40

I've just read your original thread. I just can't comprehend what your whole family has been going through. I'm glad that you and your husband are having counselling, I think to hold onto those (very natural) feelings would have been so self destructive. I wish all of you lots of love for the future.

flippinada · 09/04/2012 14:46

I remember your original thread Bullet. Thank you for the update, like others I thought of you and your daughter when that poor woman in York was injured. I'm so glad your little girl is doing well.

bruffin · 09/04/2012 15:01

I haven't read your other thread but will later. Dd burnt het hand on an iron when she was two and required a skin graft. She is 14 now and I still get the odd flashback.
Although dd,s scar is noticeable and gets commented on, its only her friends being curious and she never seems bothered by it, but obviously it is only small, ie the back of her hand.
I hope your dd continues to get better my thoughts are with you and your family

Pancakeflipper · 09/04/2012 15:12

I am another who remembers your previous posts.

Glad to hear from you and that you are battling on through. It must be overwhelming at times but bit by bit, day by day. Knock the obstacles over etc....

You know - skin grafts and dealing with scarring is improving constantly so who knows what will be available when you daughter is older.

I think about your daughter frequently. Hope all continues to go positive for her and you .

BulletProofMum · 09/04/2012 15:31

Thanks for all the kind messages. It's good to know that you've been thinking of us (iiyswim)

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